Help needed

[stephy_a]

Hy, my niece has lupus for a couple of years now. She is 23 now.

maybe 10 days ago she suffered horrible pain and nothing (aspirin, ibuprofen) could make it stop. She endured it for 5 days because she didnt want to go to the hospital. In the end she ended up there, had internal bleeding and was in intensive care. She is "stable" now but not better.

The worst problem of all right now is that her blood grains trombocites (pateletes -said google) are on the level of 23 and falling.

Does anybody know someone who could just give us some kind of an advice??

This week they will be doing test on the bones to check for leukemia.

But it is all so much suffering and all just experiments here in Croatia.

No one knows how to handle this!

Thank you for any kind of advice or help!

Stephany

[nancarolyn]

Yes I too had low platelets and was in the hospital. I have lupus, but when the blood would not clot, it was called thrombocytoplenicpurpura and they gave me lots of steroids for a long time and eventually took out my spleen. Have not had those issues in years with my blood. It took a long time before feeling better I was 18 than and am grateful to be 68 now. I will pray for her. God Bless you both

[stephy_a in reply to nancarolyn]

wow thank you very much for your message!

I tought that there was no coming back from this!

I am going to give her doctor a tipp what to look!

Thank you!

[Manclady61 in reply to stephy_a]

Hi Stephy I’m so sorry to hear about your niece, please send her my best wishes, I have SLE and idiopathic thrombocytopenia commonly known as ITP, my platelets drop I have regular blood tests, there are lots of treatments out there to help this, so please don’t think this is the end, I have managed for the last 4 years it’s something like sle that you learn to live with, I wish you all the best x

[stephy_a in reply to Manclady61]

Hy,

thank you for your kind words and hope!

I wish you too all the best!

[Chanpreet_Walia LUPUS UK]

Hi Stephany,

Welcome to the LUPUS UK HealthUnlocked Community.

I am sorry to hear that your niece has been in a lot of pain recently, please send her my best wishes.

We are not medically trained here therefore, we cannot advise you about her blood results. Have you been able to discuss them with her doctor?

We published a factsheet on ‘LUPUS: and Blood Disorders’ which you may like to read here: lupusuk.org.uk/wp-content/u...

Please keep us updated, wishing you both all the best!