I was diagnosed in February of this year with, 'mild' Lupus. Been struggling with acceptance. I did not think that 'mild' could be so painful and restrictive. I'm on meds but not sure if it is the proper dosage. Apart from inflammation /arthritis (I have poly arthritis which means every bone in my body pains), I'm also constantly sick with minor illnesses such as flu, tummy bugs etc. I sleep really badly and am so bitterly tired.
I get it when people say that typing is painful. I've constant chest pain, which the physician diagnosed as pleurisy. Tonight I'm in bed with some kind of nausea... Good gosh.
I'm concerned about my job, income... Like so many on this site. I'm a teacher and in management. 42 kids in a class, no assistant. I don't know how long I can do this for. I used to work 12 to 14 hours a day, now I can barely get through 8 and I hate not being able to pull my weight.
Fortunately, I have an amazing husband. He may perhaps not understand, but he's supportive and does a lot of the house hold chores.
This is just difficult. Typing, climbing stairs, cooking, driving... Never in my life could I imagine that I would say that even my pinky toe pains. I can't even hold a cake when I'm having a flare.
I used to be really active. Danced, jogged, played tennis, swam, love cooking. Suddenly I'm 40 and old.
Thank you for this forum. Thank you for your posts. I learn and relate, and that's the most important thing. That one feels less alone.