Still on the testing marathon

[MsAndyIvy]

Hi All

I do hope everyone is as well as can be. I’ve been keeping my head down and trying to come to terms with my suspect diagnosis of ME, Fibromyalgia and Migraines. I have just got to admit that I am not well.

However, I’ve actually just received my letter following the neuro consultation in February!

Guess what?

He thinks it’s probably Sjorgen’s. I should have listened to Twitchy Toes earlier! More tests on the horizon.

Though I am not sure this would cover all my symptoms.

My list of HU forums I need to join is ever increasing.

[Hidden]

Yay for being taken seriously at last?! And I say this in a weird, perverse way that only we can grasp of course!!

And of course Sjögren’s would cover it ALL - it’s a total horror that can and does affect every part of us!! It might help if you phone the BSSA helpline - they are fab. X

[MsAndyIvy in reply to Hidden]

Thanks Twitch!

Perverse indeed. Felt quite smug that there might be something ‘proper’ up with me and someone has realised.

I’ll look at BSSA xxxx

[cuttysark in reply to MsAndyIvy]

Isn't it awful that we feel better when we "have" some actual thing!!!

I felt delighted a couple of months ago that my negative ANA was at last becoming positive !!!! The picture with me is finally becoming a little clearer.

The thing is we feel like utter crap and we know we are ill, it is so wrong we have to have the tick boxes to feel we are being taken seriously.

Good for your neuro to suggest Sjogrens!!

Lets hope this will take you forward in the battle at long last! XX

[MsAndyIvy]

So ridiculous!