LUPUS UK
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Feeling low

I’m sorry to moan but things have got to me today and I’m feeling really low.

We haven’t had much snow in our town but it still has me housebound. The whole town has been covered in ice and I know I can’t risk falling over and needing to go to hospital. Anyway what’s really got to me today as I’ve had to rely on my parents who are both in their seventies to get me some bread and milk. In their time of live I should be looking after them surely. I hate being like this.

12 Replies
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Don’t feel low, if you could have gone to the shop you would have, your parents understand, if you was well you would be looking after them, chin up

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Thank-you. Everything has got to me today. I’m sure I will be ok tomorrow x

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I know those feeling, enjoy the rest of your Saturday

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And you x

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Hi,

I am at where you are now...just wish my parents were still here! This dry mouth etc is driving me nuts, and feeling depressed a little more each day. Try not to feel low..easier said than done I know. Your parents are more than likely feeling honored that they can help, a big smile (even if your lips are sticking to your teeth!!!) and a thank you is all any parent wants.

Hope you feel better...

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Thank-you. The dry mouth is awful and no matter how much you drink it doesn’t make a difference. Xx

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You are not moaning, just expressing yourself which is a healthy thing to do. I hate asking for help, but this condition means that we have to sometimes bite the bullet and accept the help that people offer. Your parents are probably more than happy to do this for you. My partner says he feels helpless when I'm ill, so he loves to do anything he can to help. It helps them too. What I have learned to do during downers is to tell myself that everything is temporary, ride it through. I find this helps. Hope you feel better soon. X

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Thank-you x

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Hi, I totally understand hating having to ask for help as my parents are both in their seventies and are constantly shuttling me to medical appointments as we live in the middle of nowhere with no buses and I can’t drive because of my lupus-related epilepsy. If your parents are anything like mine they’ll be all too happy to help. Mine actually feel guilty for passing lupus on to me without having it themselves!

We all have days where we feel low, but try to relax, have cups of tea and whatever you find comforting, stay warm and watch something comforting (I always find the 1995 bbc pride and prejudice helps when I’m feeling low).

Lots of love to you. I hope you feel better soon xxx

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Thank-you xx

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I feel like u. An overwhelming sense of guilt that it should be me, that my mum should be relying on instead of the other way around. My mum is in her 70's. Lupus has me prisoner. Denies me a real life. People think I look great, but they see me good because when I am in dire pain, I daren't venture out.

Good luck. Don't beat yrself up, cos it folks know you & are choosing to help u out because of the LOVE they have for you. Just show them ur love & appreciation... give em a hug....smile more😊👍🏽😘

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We all help each other in different ways. It keeps the world turning with a laugh, smile and the odd moan! Best wishes Kevin

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