First Post

[RahanaBi98]

Hello.

This is my first post...I have been diagnosed with Lupus. I am also pregnant which has made me feel even worse. Hope I can get the support I need from this forum.

[jennyall12]

Awww first congrats on the pregnancy That is exciting! How long have you have Lupus and how has it affected you? Are you being seen by a high risk doc?

[RahanaBi98 in reply to jennyall12]

Thank you! Well first I had hyperemisi and then when the sickness stopped I started to feel so achy, joints were hurting and high temperature every night. Couldn't eat anything and had the fatigue so much that I was bed bound. Went to see the gp and all he gave me was paracetamol. So for 3 months I struggled with the pain just taking paracetamol. I came to moms house as Ive a 10 month old and could not look after him.

Then new years day my sister took me to the hospital. Tests were done and was diagnosed with Lupus. I was in hospital for 3 weeks as yes I am a high risk due to my pregnancy. I'm on medication but low doses. Have to go hospital for baby CTG 2 times a weeks and injecting Clexane. I due to have the baby in March, c section. Or before if there are any side effects.

[The_Guru1 in reply to RahanaBi98]

Wow, you are a true warrior!! I will pray for you. Stay strong and make sure to talk to your baby and rub your belly, telling your baby you love him/ her

[The_Guru1]

First of all congratulations!!! I would suggest to you that you try to do a bit of walking for about ten minutes a day. Get in some sun, smile, stay stress free, make lots of love and more importantly , no medication!!

You probably won't have any issues with your lupus in fact once you get past the first three months you should be great!!

[RahanaBi98 in reply to The_Guru1]

Thank you for your kind words. Hopefully it will go away after iv had the baby.

[KatieRL]

Hi there, I was diagnosed with Lupus (SLE) and then found out I was pregnant too! However that was quite a few years ago, but the maternity unit (and my Lupus doctor) kept a very close eye on me and I had a few more check-ups/blood tests than usual. Despite my Lupus issues, I managed really well and although my baby boy was only 5lbs at 34 weeks, he's now a strapping 6'4" lad!! If you are not already a member of Lupus UK, I'd definitely check them out and join up - I found this a fantastic support group - and still do!

[RahanaBi98 in reply to KatieRL]

Iv been kept a close on aswell. Iv had a blood test today so will to see what the results are. Thanks for the support.

[leslieliesel]

Wow...the emotions you must be feeling.....Congratulations on being pregnant xoxo

[RahanaBi98 in reply to leslieliesel]

Thank you😊

[Wendy39]

Welcome to our lovely group! So glad you found us. Congratulations on your pregnancy! You must be over the moon. Are you tired as well as the extreme sickness? I hope you are being treated very well by your medical team. Please keep us up to date on your progress and ask lots of questions. My lupus was set off by the birth of my 3rd baby so I can’t offer advice on your pregnancy with lupus but there is always someone who will help out by sharing their experience. Take a look at the Lupus UK website, there’s loads of information sheets on all aspects of lupus. And most importantly take care of yourself. Get plenty of rest and listen to your body. Best wishes, Wendy.

[Chanpreet_Walia LUPUS UK]

Hi RahanaBi98,

Welcome to the LUPUS UK HealthUnlocked Community and congratulations on your pregnancy!

I hope you find this forum useful – we have a lovely community who are always willing to help and support each other!

With close monitoring, many lupus patients have successful pregnancies; we published a booklet about lupus and pregnancy which I hope you find helpful - lupusuk.org.uk/wp-content/u...

We offer a free information pack which contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts who you can chat with over the telephone. To download or request the pack, click here: lupusuk.org.uk/request-info...

Please keep us updated, wishing you all the best.

[RahanaBi98 in reply to Chanpreet_Walia]

Thank you for you support and kind words. Will definitely have a look at those links 😊

[Kevin53]

Congratulations. Best wishes Kevin