Today I have had excruciating pain just under my shoulder blades. It is almost like a cramp has anyone else had this?
I think I’m pretty run down generally, I have a mouth that’s very sore and has a few ulcers, I’m also getting on going migraines which my my meds help and but seem to be taken longer to take effect and once they have worn off the migraine comes back, full force. I’m sorry for moaning it just feels never ending including my body being so sensitive even clothes hurt. 😖😞
Yes I get it all the time especially in my shoulders and then goes to my lower back around the kidneys that’s how I first thought something was wrong was diagnosed about 2year ago with mixed connective tissue disease /lupus .The most horrific pain just doesn’t seem to go away hope you feel better soon x
I am sorry you suffer too. Thank-you for replying.
I have not been diagnosed yet, still looking for a doctor to actually take me serious when i describe my symptoms. My shoulder blades and neck has locked up on me. My neck was stiff and hard as a rock also nodes in neck near ear get these hard knots which feels as if an earache is coming on. It goes all the way down both side of my spine almost like it could be kidney or bladder infection also my upper buttocks and legs. I often get charlie horses and spasms. I am in constant pain especially when its cold weather. Recently my left ear went completely silent i pushed on it and i get the popping sound, feels like something is plugging my ear and tightens my throat area. It so weird.
I have definitely had that pain! Very unpleasant, and yes, other symptoms flare. I am diagnosed Sjogrens syndrome ?lupus.
That pain was so awful, on my birthday, I sat quietly crying, as 10 family members tried to make me smile and eat birthday lunch in a restaurant.. oh the memory.
So, I've suffered with it a few times, nothing would get me out when it comes now, I just rest, take pain relief n pray it soon goes. It eventually goes.
For me, I thought what's the point discussing with medics, what they can't see......
Wishing you well. X
It certainly took me back, guess it is just another symptom that’s add to the ever growing list. Take care and thanks for replying. X
Hi Tinkerjack1912 ,
I am sorry to hear that you are experiencing a lot of pain at the moment, have you spoken to your doctor about this?
We published a blog article on 'pain management' which I hope you will find useful: lupusuk.org.uk/pain-managem...
UV light can trigger a flare in people with lupus. Some people with lupus feel unwell after going out in the sun, even for a relatively short period of time (in extreme cases for as little as a few minutes). For example, they may develop migraine, nausea (feeling sick) or joint pains. To read our blog post on 'coping with light sensitivity' click here: lupusuk.org.uk/coping-with-...
We published a factsheet on ‘LUPUS: and the Brain’ which you can read here: lupusuk.org.uk/wp-content/u...
Oral (mouth) and nasal (nose) ulcers are one of the most common features of lupus occurring in around 45% of people who have SLE. We published a blog article on coping with oral and nasal ulcers which you can read here: lupusuk.org.uk/coping-with-...
If you would like someone to speak to, we can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at chanpreet@lupusuk.org.uk .
Please keep us updated, wishing you all the best.
Thank you I will look at the fact sheets. I’m seeing my doctor soon so I will speak with her then. I have added it to my ever growing list. X
Yes, I had this all winter, along with muscle spasms which were absolutely excruciating. We did a bunch of different things to try and get it taken care of: changed the mattress for more support, I started some physio through my GP which was helpful, and I got a small scrip for diazepam for the spasms (which I thankfully didn't need to take for long). To be honest I figured it was something I just needed to suffer stoically (as I usually do...I think we've all become used to doing that) so I didn't really think there could possibly be a solution, but with combined effort across the board it's receded and is much better.
Have you had a blood test? Are you deficient in something somewhere? When it came to having lots of aches and pains/ulcers/etc it turned out I think I was very low in Vit D as well as anaemic. I'm not saying rush out and get a bunch of tablets, but maybe if you have a supportive GP you can make a request and see what's going on.
I wish you ease.
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