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Lupus burning

Hi, I have recently been diagnosed with lupus and waiting on bloood results and biopsy to find out what extent of lupus. I'm literally covered head to toe with the lupus rashes, even on my private areas. The pain is unbearable and reduced to tears and cries in agony, it's the burning feeling that I can't cope with, has anyone tried or down something that has helped soothe it?? Please help I don't know what else to do

2 Replies

I used to have the same burning with an "invisible rash". Have you tried Benadryl? That has helped me in the past. Also, once I was able to get on Gabapentin it stopped all of the odd burning.


Calamine lotion. It eases the desperate need to use a wall to scratch myself like a bear ;) Be well!


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