Hi All. I know Barnclown has posted several excellent and informative posts about this so this will be brief. I seem to have reached a dead end with my liquid Senna now - after 3 days of hideous abdominal pain and terrible emissions! Combined with max amounts of Lactulose it has been giving me some kind of "normality" in this department but Senna is obviously no longer option. I have been blaming the increased dose of Mycophenolate for the worsening nausea and tummy pain but find it's eased a lot now I've dropped Senna from the menu.
I seem unable to progress my GI problems into a gastro referral. I haven't asked wonder GP but did ask her colleague about 3 months ago and she declined to refer me. Have no appointments lined up just now but am seeing my rheumy again on 22nd of next month. How useful do people here think a gastro would be in helping me with this? Found this link and it has helped focus me a little. ncbi.nlm.nih.gov/m/pubmed/2...
I can't face another one stop shop referral to someone who just shrugs me off. I'm worried about the Mycophenolate just now because, although my monitoring bloods have been fine to date - I'm experiencing a bad flare of widespread pain in muscles, tendons and nerves. I'm thinking it's not really doing much for me and the risk may not be worth the side effects. My face is covered in wee pimples and is sore and I feel I have some fluid retention everywhere and hyper pigmentation in these weird blocks of freckles and white patches that I've never had before . My old chicken pox scars are itchy and I seem to have new pitting on my forehead. None of this is particularly terrible of course but the discomfort in my skin and mild nausea is making me feel uncertain that it's a price worth paying?
On the good news front - my whole family conspired to surprise me with the return of my oldest son after 15 months on the other side of the world! He's recovering from jet lag to be a giant presence in our new wee house!!