I want to talk about the financial problem that maybe some of us are having right now.
I'm 24 and I'm working in my own business, and the money is good, not a lot of money but it's more than enough for people at my age. I make twice or sometimes 3 times than a standard employee payment in a company.
I still live with my parents. My parents are still working and I still have my parents pay for my medications. I don't come from rich family. I don't live in UK. There are some issues I found that people with SLE will face :
1. I don't think a company would hire someone who had disease. First, the problem with health insurance that company provides, second, why would a company hires someone who could be sick anytime and not productive? I don't want to be skeptical but if I am the CEO I wouldn't hire sick people too.
2. I can't join health insurance. Insurance needs healthy people to join them. And usually they targeted young people because they are healthy. In my country there is also a goverment program for everyone so they could get free health treatment in hospital. But the situation is just like in economic, if you want free items don't expect it to be good. For now, I can afford the medications. Thanks God.
I'm sorry if my post sounds so skeptical and complaining about work. But, by writing this I just want to learn maybe you have some financial tips for our condition? Or what kind of jobs are you having with this condition? Since we are not allowed to be too tired.