connective tissue disease

[kaya12]

Hi

I have been diagnosed with connective tissue disease and know nothing about it GP was not helpful i take hydrochloxichlorine and azithopricine but nothing for pain only ibrupofen which wont work and dr very dismissive of diagnosis any help appreciated xx

[Chanpreet_Walia LUPUS UK]

Hi Kaya12,

I am sorry to hear you were not satisfied with your GP appointment, have you considered requesting a referral for a second opinion with a specialist?

It is advised to speak to a specialist such as rheumatologist to understand what type of connective tissue disease you have been diagnosed with? This will give you a clearer understanding of what types of treatment may be available to you. If you feel that your current pain management treatment is not adequate enough, discuss this with your healthcare practitioner during your next appointment as he/she may be able to review your treatment.

Wishing you the best of luck, let us know how you get on.

[misty14]

Hi Kaya

Your GP should be able to help you with pain relief. If he's not willing then have you thought about changing GP's. He doesn't sound very helpful. X

[EOLHPC]

Hello Kaya

I'm glad you found our forum...it's amongst the best...and has made all the diff to me since my diagnosis years ago

I wonder whether you have been given a copy of the rheumatologist's report which will have been sent to your gp after your consultation.

If you're prescribed hydroxy + azo, this indicates Rheumatology has given your version of immune dysfunction + connective tissue disorder at least a provisional label....possibly Mixed Connective Tissue Disease (MCTD) or Undifferentiated Connective Tissue Disease or Incomplete Connective Tissue disease. The rheumatology report should include your label which for now is considered your diagnosis, even if it's provisional. All of these terms label conditions that have a lot in common with Lupus...and there are many people here on forum diagnosed with these labels, taking meds like those you're being prescribed

The publications section of the LUPUS UK website has a PDF leaflets on lots of subjects including associated conditions & Mixed Connective tissue disease...you can download it & have a read. Here is the link:

lupusuk.org.uk/publications/

And I hope your gp will give you a copy of your rheumatology report soon: he must if you ask for a copy

I can't add anything to the good advice misty & chanpreet are giving you re your gp & pain control ☺️

Take care, try not to worry...but remember: we're here if you want good company & understanding & feedback

🍀🍀🍀🍀 coco

[Ljay in reply to EOLHPC]

Could you send me some links please as that's what I have. Thanks

[EOLHPC in reply to Ljay]

Hello Ljay: click on the blue link in my reply to Kaya (above). The link will take you to the Lupus UK website's publications section. Scroll through the titles and you'll find the "Lupus & Mixed Connective Tissue Disease" leaflet, which you can click on to down load as a PDF

[Ljay in reply to EOLHPC]

Thanks

[EOLHPC in reply to Ljay]

Hello again...maybe you saw this recent discussion here....it includes links to so info MCTD that might help you. Click on this link to get to the discussion:

healthunlocked.com/lupusuk/...

[Joy_1]

Hi Kaya

If it turns out to be UCTD (undifferentiated connective tissue disease) then let me know. As that is what I have. I can send you some links.

good luck with getting to the bottom of your diagnosis.

Joy