As those of you who know me will know, I made contact with my MP last year complaining about the lack of specialist care for lupus sufferers in South West Wales and the fact that I had asked 3 doctors for a referral to my Knight in the Heath Hospital Cardiff for continuity of care, after building up a good relationship with him and a lot of trust, after being ignored by my Reluctant Rheumy.
Anyway, my MPs secretary phoned before xmas and said she was putting my file on hold for the time being and would contact me again after I saw my GP with a Specialist Interest in Dermy in January 2017 and at that time they felt they would do me more harm than good if they pushed further.
I replied in the New Year with quite a frank email (on a bad day!) basically saying that if our MPs didn't want to help and just accepted the status quo what chance did we stand. ( I got a little rattled and emotional.
Well, his Secretary has now got in touch by email and asked me to attend my MP's office to meet with him and a Senior Officer from the Health Board to discuss my situation.
Trouble is, as much I want to go and explain in person, as I haven't yet - just email contact with MP, I get sooooo emotional when talking about my health and giving up work etc. I fear I may come across as just luppy. Ha ha.
My husband says he'd come with me. Or I could put my case in writing? But that wouldn't have the same effect would it. Maybe something written from Lupus UK backing me too?
I'm not sure. Can I be brave enough?