Hi all. My Gp has just referred me for ?? lupus. i have many symptoms and have done for the past five years. chronic joint and muscle pain. unexplained headaches fevers and mouth ulcers. urine frequency. night sweats and severe exhaustion. any advice please
Mel
Hi maddien ,
Good luck with your referral. I hope that you get a diagnosis for your symptoms and some treatment to help alleviate them.
If you need more information about lupus and how it is diagnosed, we have a free pack which you can download or request from our website at lupusuk.org.uk/request-info...
Hi Mel, I had all these symptoms too, mine had been going on for about 5 years too when I was first referred to rheumatology. It's taken a further 18 months to finally get a lupus diagnosis and start treatment. I had a positive ana test back in 2015 but Dr decided I wasn't sick enough to have lupus, sadly I am now !!
If the tests point towards lupus don't be fobbed off, at every appointment tell Dr all your symptoms. I was only diagnosed when I started saying about the mouth ulcers and hair loss, which in the scheme of things were the least of my worries.
I had severe pain in my hips to the point I couldn't stand, I had a contrast MRI done which showed a tear to my cartilage. This wasn't caused by the lupus but from years of running when I was healthy. It threw everyone off and delayed diagnosis as Drs thought all my pain was due to hip injury.
Yes i am the same and its really taking its toll. it all started after a thyroidectomy 5 years ago. mri this year showed synovitis on my spine and bloods are showing abnormal kidney function which could explain the breathlessness. i just want to feel ok ish again. they are testing me for lupus rhaumatoid arthritis or another auto immune disease. unfortunately the symptoms are confused with other illnesses i believe. i agree doctors can fob you off and have done
Lupus
Lupus?
Lupus or not
Lupus 
