Went out yesterday to come home to an appointment letter, 8.30am which would be good first appointment but I have children and hospital is 25 miles away 🙁
Rang to change it, they had just had a cancellation 11am 3 weeks sooner.
I should have been seen in May so this appointment is a long time coming, it's my 4th appointment at this hospital, I've had several blood tests, a change in medication but still no firm diagnosis.
I have some photos to show them of the rash I had in the summer, plus details of my symptoms, worsening brain fog, can't even get the wrong word out some times, copy of blood test results my GP has done-they thought they should do some as I had not had any since Jan.
What else do I need? What to get the most out of the appointment?
It's over 12 months since I had a lung function test, I was told I have lung scarring, although I did have a chest x-ray about 12 months ago, do I need another? I get out of breath walking up stairs or a hill, I'm 45 and have never smoked.