I spent yesterday in the emergency assessment unit of the local DGH after weeks of feeling progressively worse and worse - extreme exhaustion, nausea etc - to the point where I am now struggling even to do basic stuff like getting up from my chair to make a cup of tea. There, the non-specialist consultant said she needed a specialist opinion. She joined my GP and the out-of hours GP I saw recently in saying, basically, "I have no idea what is going on".
I returned for the specialist opinion this afternoon, and now I am back home.
The good part was that the specialist was my respiratory consultant, who I like and trust. Since I last saw him only 3 weeks ago, he could see how I have deteriorated since then, and I didn't have much explaining to do.
The bad part was that he concluded that he couldn't work out what was going on either!
He suggested some minor adjustments to my drug regime - a small increase in prednisilone and stopping the myco altogether - but thought these were unlikely to be at the root of my problems.
More blood tests, a full body scan and an urgent review with my rheumy are now on order. Luckily (?), since I live only 100 yards from the hospital, I can be a "Virtual In Patient" and sleep at home.
So many thanks for the supportive replies I got earlier today. I really was in a bit of a panic