Help: Hi I'm Ruth and I suffer from migraines,mouth... - LUPUS UK

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Blondie2903 profile image
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Hi I'm Ruth and I suffer from migraines,mouth ulcers low white cell count pains all over, tiredness,swelling below my knees had endrometreois then was given hysterectomy also suffer dry eyes and itchy skin fed up they say its fibromyalgia but I don't think so going on for a long time

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Blondie2903 profile image
Blondie2903
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Natura profile image
Natura

I have mouth sores from time to time. Stress.... Vit c and b 12. Take them everyday. I use natural tears for dry eye. Helps a little.

Polly2Cats profile image
Polly2Cats

I have similar symptoms. Naturas advice helps me too. Drinking as much as i can manage helps my migraines (coconut water seems to really soothe and hydrate). I avoid artificial sweeteners. Eating little and often also helps. I also rotate my pain relief. Sometimes nothing helps and preventing the headaches just make them worse until I have a full blown episode. My current meds of choice are buscopan (to help absorb painkillers) and cocodamol which knocks me out. If I'm not home I'll take paracetamol and up uptown together. Randomly I find that a dose of protein (even a Big Mac) can head off a migraine.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Ruth,

Who diagnosed you with fibromyalgia? Was it your GP or a rheumatologist? Do you know if you have had any blood tests for lupus or other autoimmune conditions? If you are not satisfied with your current diagnosis then you can ask your GP to refer you for a second opinion. You could ask to be referred to a rheumatologist who specialises in lupus. If you are in the UK and let me know what area you live in, I can provide you with information about any lupus specialists who may be nearby?

If you would like more information about lupus and how it is diagnosed, we have a free pack which you can request or download from our website here - lupusuk.org.uk/request-info...

There are some things there that seem inconsistent with fibromyalgia. I agree that another opinion would be good.

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