Mustle spasms

[Bluebell-2016]

Hi, I was diagnosed with Lupus sle a year ago. New symptoms are mustle spasms in my arms. Does anyone else experience this ?

[MargaretGail]

Yes my muscles spasm every day, particularly when I'm tired. It's mostly my hands but my feet but it can be anywhere

[Bluebell-2016 in reply to MargaretGail]

Thanks for your reply. It's great to know what is going on.

Take care.

[Hidden]

I have muscle spasms everywhere, thankfully not at the same time. Sometimes a foot or a leg or two feet or a hand or upper rib cage or lower rib cage. It is not fun.

[creaky in reply to Hidden]

Horrible in your rib cage, I hate that too 😱

[creaky]

Yes, it first happened when I was trying to get off a train, my hand doubled back so that my fingers were painfully touching my inner arm, and I couldn't pick my suitcase up.

Someone had the help me get off the train and I managed to press my hand against a wall to release the spasm, entertaining for the public but painful and embarrassing for me.

Also wake up with very painful leg cramps. I try to have 2 glasses of tonic water every day, which I find helps.

[Hidden in reply to creaky]

OMG... how painful and debilitating. I'm glad people helped you. For some reason I almost freak out every time my hand decides to get stuck in a spasm. I'm glad it doesn't happen very often.

[creaky in reply to Hidden]

Yes it gets to you doesn't it?

I often wake up with leg cramps, I wake up yelling and my long suffering husband jumps up to help me sort it out.

For me they come in clusters, with lupus flares I guess.

I bought myself a hot tub with part of my retirement lump sum, which is wonderfully relaxing for spasms and great temporary pain relief. I feel very lucky to have it some days.

A warm bath might have the same effect, if you can get into the tub, (not always easy I know)

[Hidden in reply to creaky]

I wish I could get into the tub... I need stairs to get in and out... my knees don't cooperate, etc... I'll sort it all out hopefully when I get back to the states. Thanksfully the agony is not long lasting and sporatic. Only once since being here did I think I would have to go to A&E. The pain was so back I felt sick (stomach/intestinal)... after 30 minutes it passed and I could walk. I hope that never happens again. I'm glad you are getting relief!!

[creaky in reply to Hidden]

I hope that your situation improves soon. 🍀 🍀 🍀

[Hidden in reply to creaky]

And same for you!

[Bluebell-2016 in reply to creaky]

That was very painful for you.

[Wendy39]

Hello, yes, I get muscle spasms. During a flare late last year I had them in my back, very painful. Then this year I have started getting them in my legs. Mainly left but can be either or both. It's a very strange sensation. Like butterflies. But sometimes I can see the twitches they are that big. It happens mainly when I am resting. I get a lot of headaches too and one of the GPs at my surgery recently casually dropped into conversation that I had Central Nervous System involvement with my lupus (SCLE) so I guess it's all linked. Funny disease we have and we are all so different with our combination if symptoms. I love this site though, as it's very reassuring to find others with the same weird and wonderful problems. Do these twitches in your arms cause you to drop things? Do you feel it coming on?