Try anything....: On Friday I'm seeing a health and... - LUPUS UK

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Try anything....

Ladybelle2015 profile image
11 Replies

On Friday I'm seeing a health and nutrition specialist, and will be getting some allergy/intolerance testing done. It's costing me a small fortune, and I'm feeling quite guilty about spending so much money "on myself", but I'm making no progress with my GP, and feel anything that may help is worth a shot.

I just wondered if anyone else had gone down this route, whether you found it useful and what your experiences were?

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Ladybelle2015 profile image
Ladybelle2015
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11 Replies

I would make sure that they are using tests that are certified to check for allergies ( skin prick testing or RAST blood tests ). There are no tests that have been proved for intolerances ( hair samples, VEGA testing etc ) has no scientific basis. The only way to rule out intolerances is an exclusion diet.

The Allergy UK website is a good source of information.

Ladybelle2015 profile image
Ladybelle2015 in reply to

Hi, yes it's a qualified, kosher person I'm seeing, just paying privately as I life in a rural area and waiting lists are beyond unbelievable.

Foggybiddy profile image
Foggybiddy

I'm going the same route @Ladybelle2015 and looking forward to getting my results in 3 weeks time. Will post again then. Good luck with yours. Anything that helps has got to be worth spending money on ........

Ladybelle2015 profile image
Ladybelle2015 in reply to Foggybiddy

Hi Foggybiddy!

Yes I agree with you. I can't carry on just hoping my GP starts trying to help, so helping myself will make me feel better I'm sure.

jacqueline121 profile image
jacqueline121

Hi, I went to a nutritionist and for a bit of help there, but I'm looking into a more plant based diet to see if that helps. I'm also trying wheatgrass, chamomile and nettle tea, as they are anti inflammatory. Having massage and acupuncture and trying not to have gluten and dairy. Not sure it's making a difference yet. Still, it can't do any harm.

I would be interested to see how it goes for you. I hope you have good results.

All the best

Jacqueline

Ladybelle2015 profile image
Ladybelle2015 in reply to jacqueline121

Thanks Jacqueline.

It will be interesting if nothing else.

Think I might try & track some nettle tea down.

Cann profile image
Cann

Yes, I found it extremely useful.

Of course I had a brilliant practitioner or 3 in fact. They worked together because they found lots of allergies and problems not just with food, but chemicals, EMF, etc. when I was seriously ill and had been written off by the health service,

I felt that this was because they didn't have the skills of the complementary practitioners, I saw.

One practitioner was an ex-NHS nurse who was fed-up with the way patients like us are treated or not treated should I say, so his 30 years nursing experience was valuable, too.

I was found to be allergic to many foods and also intolerances with a serious fungal infection and IBD which I had been told by my doctors was IBS, but I knew it was more than that.

I also had a large lump in my colon which my GP suspected was cancer, but I couldn't go down the route of sigmoidoscopy, chemotherapy, etc. because I had had too many drugs and traumatic treatment already and a gastro-enterologist agreed with me.

I eat no dairy - I was diagnosed with asthma in '94 and put on steroid inhalers for 6 years which I was told wouldn't go into my blood stream, but they did and my hair was falling out, too.

When a naturopath actually found I was allergic to dairy and I stopped the dairy, I didn't need the inhalers any more.

The naturopath felt I had coeliac tendencies through doing a life history medical check and with my symptoms - no doctor had ever done that or suggested a coeliac test.

I stopped gluten all grains, in fact.

I was tested using a bio-com vega export system, but I don't know of anyone in my area that does this now, sadly as my practitioner died. I was also tested by a kinesiologist/nutritionist to see if the results were the same because at first I wasn't sure and the doctors 'poo-poo-ed' it all, so I needed to be sure.

I was 5 stone 10 pounds then and now I am 8 stone and still here to tell the tale when doctors gave me little hope 16 years ago.

I say go with it, but go by your gut feelings, too, because no-one can know everything about you and go with reactions to things you have and if possible dowse or get someone to teach you how to muscle test yourself.

This has helped save my life, too, because the practitioner was 100 miles from where I lived and she felt I needed to test everything I ingested at that time - brilliant, it is and I thank them all for saving my life - lovely people.

I also thank Bristol Homeopathic hospital for their help - all brilliant doctors there, too, but in its wisdom the government/NHS has closed the hospital or made it impossible for the hospital to continue.

Good luck and let us know how you get on, please. X

in reply to Cann

I'm sorry but an allergic reaction is an antibody/ allergen response which is almost instantaneous. There is no scientific basis to a bio-com vega export system, dowsing or homeopathy. There are no tests for intolerances apart from an exclusion diet.

I am not trying to be awkward but my children have food anaphylaxis and have life threatening reactions which require adrenaline. In order for their problem to be taken seriously it's important to differentiate between true IGE mediated allergies and intolerances.

Ladybelle2015 profile image
Ladybelle2015 in reply to

I titled my post try anything because I will. I'm not a believer in homeopathy but I am a believer in letting people make choices.

There is no "one test" which diagnosis immune disorders but it's all I seem to be offered by my GP and after 5 years I think it's time to try something different. The person I'm seeing is qualified, works for the NHS and is testing for allergies (intolerances may have been the wrong terminology), so whilst I'm paying privately it's not vodoo Mumbo jumpo.

Thanks for taking the time to reply but I'm only really interested in people's stories about changing diet etc to help.

in reply to Ladybelle2015

Of course people have the freedom to make choices. I understand the frustration in trying to get a diagnosis with anything rare and auto immune, it took me 4 years. I am actually very interested in diet and set up a Healthy Eating group on Facebook for people with Vasculitis which is part of my diagnosis.

Forgive me for making the point about the differences between allergies and intolerances, it comes from 17 yrs of trying to get people to understand that food is a potential killer for my children.

So I will get down off my soap box and wish you well in your search for answers.

Cann profile image
Cann in reply to

There is no scientific proof for consciousness, but it exists!

Allergic reactions can happen the next day depending on the state of the immune system and ability to react.

The mentioned systems saved my life and that is proof enough for me and to think that 3 practitioners unknown to each other until I introduced them, all identified the same allergies, intolerances, fungal infections and lack of good flora and fauna due to excessive use of antibiotics, that is further proof to me. Scientists have been wrong so many times because of lack of doing the right tests.

You are right about your children.

I, too, had that reaction to eggs and it was because egg is used in dental anaesthetics and I had had too many dental anaesthetics, I went unconscious with two injections of anaesthetic as well as the reaction to the eggs.

There is too much emphasis placed on what happens and not enough placed on how to prevent it or treat. Sadly, the conventional system is based on keeping us sick not healing us - there is no money in healing us.

The complementary practitioners had been seriously ill themselves and genuinely wanted to help others as they had been helped.

They showed me ways of helping myself such as rotating food. Doctors didn't have a clue about food except those at the homeopathic hospital.

I know what I and so many others have experienced and come through with their help.

Kinesiology or muscle testing is based on the autonomic nervous system and the sub-conscious - the inner higher self if you like and we are all different. The tests the doctors do are the same for everyone - how can that be right especially when the body is changing all the time?

I, too, used to think like you, but being seriously ill and finding the conventional system had contributed to that and when I needed it, there was nothing there to help me, I had to have a radical change of approach, but a healing one as opposed to treating the symptoms and not the cause with toxic, traumatic surgery and drugs.

If what you are doing works for your children then that is good, but for so many the conventional system fails them - they have no choice but to look elsewhere in order to survive just as I did.

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