Since I previously posted how nervous I was, I thought I'd let you know how I got on at my 2nd rheumatology appointment last week. Since ALL my bloods came back negative, I didn't respond to the prednisolone injection, and I haven't felt any improvement on the hydroxy in 4 months, I was worried that he'd say there was nothing else he could do, and I'd be left alone again with this awful condition.
Well he didn't dismiss me, he IS continuing to treat me. I still don't have a diagnosis, he's a connected tissue disease specialist and he's baffled, but he did say that even when there's no diagnosis for a long time, he always gets a diagnosis eventually. Hurray! I can stay on the hydroxy. Hurray! He'll see me again in 2 months not 4. Hurray! And if I'm no better then, I can move on to methotrexate because he's taking it seriously. Hurray!