Lupas info, very interesting.

[Razoo]

Facebook group attached:

[Kate-L]

I was advised by a very experienced Chinese Acupunturist that he would be able to help the symptoms of my SLE but would not be able to cure the underlying cause, i.e. autoimmune disease. True to his word,he stopped the swollen joints and pain in my hands, wrists, fingers, knees, hips, ankles etc., however I was advised to keep to the treatment I was being given by my rheumy doctors/gp. I find claims that Lupus can be cured without proper treatment/medication dangerous. If you decide to do anything then let your doctors know beforehand, otherwise you could be doing unknown damage for life.

[Razoo in reply to Kate-L]

Kate-L, that's wonderful, just to have no pain is all Id like, that's cure enough for me. Did the Accupuncture hurt.? Did you need any other medicines?

[Kate-L in reply to Razoo]

No I needed no further meds for pain in my joints after acupuncture - doctors said it was coincidental, but they had been trying to help me for a couple of years with no success. It didn't hurt (well, not like the joint pain that's for sure). Don't forget to check with your Lupus doctors before you going ahead, it's best to be safe!

[Hidden]

Yes it might cure the misdiagnosed.

Hi, something like this is worth a try for me as although diagnosed by the lupus unit at St Thomas' 7 years ago with SLE and lupus anticoagulant recently a rheumy of Chronic Fatigue who is now treating my 13 year old daughter thinks I have that rather than lupus seeing as my joints don't swell, my bloods are usually normal and my ANA titre is low and yet I hurt!! Having Lupus anticoagulant doesn't mean you have lupus Ive been told either - confused!!

Anyway, the treatment for Chronic Fatigue is mainly supplements plus graded exercise and alternative therapy as conventional meds don't seem to help. The problem with this is it all costs money and is not covered by prescription /nhs

[Paul_Howard Partner LUPUS UK]

I would like to remind people to ensure that they discuss any alternative or complementary treatment with their consultant before starting. It is worth bearing in mind that due to the significant differences between lupus patients, what works for one person, may not work for another (or could potentially be harmful).