Well he's done it again! Went to my GP for a prescription for medication which the rheumatologist was going to ask them to prescribe, only to find out that after two months they had heard nothing. GP found a letter on the hospital website which should have been sent but hadn't, and there was no mention of any medication on it. I told the GP what was discussed and got the cheaper alternative to the one spoken about.
At the hospital appointment I actually saw the man himself. My left ankle was swollen so he listened to my chest and told the two students that were there that there was no sign of CCF apart from the swollen ankle. He said that the two raised beta2glycoproteins were of no significance and he wasn't going to do anything about that. I told him I had had vasculitis again and he asked if had taken a picture. I said no as I had shown him pictures last October of last summers episodes, he said he had not recorded that.
So... My feet were swollen the first time I saw him 18 months ago and I showed him then, and they have been a problem for years.
At the first appointment he was going to refer me for physio on my neck but never did.
He has put off prescribing medication for 18 months and hasn't even mentioned it in the letter that hasn't even been sent th the GP, if that makes sense.
Now, out of the blue, I get an appointment for an ECG which was never mentioned either at the appointment or in the letter that has never arrived!!!
Sorry for the rant, but I have had enough.
Hope no one else has to go through this.