I've written previous posts about my difficulties re my daughter and I. After 2 complaints due to lack of help for symptoms For myself and daughter from Carlisle rheumy and GP, I saw prof ***** in London through referral from another Dr. I was diagnosed with lupus first, then Carlisle rheumy contacted ***** who then changed his diagnosis to uctd. After illness in February GP diagnosed polymyalgia rheumatica. I had been trying to get my daughter referred to ***** despite GP lying to me about her kidney results. I got the referral after seeing an MP. Last appt with ***** he retracted my dx by follow up letter and when he saw my daughter he ignored abnormal kidney results and said her kidneys were fine (x Ray vision it appears), said he did not need her medical records, ignored 26 photos, wrote an incorrect write up of this appt and then told me he was sorry if I was disappointed my daughter did not have lupus! The GP had been in contact with *****. I found out later that GP has written on her records that I have fabricated her symptoms (no doubt to cover themselves after no help given to me for 14 yrs) and their knowledge that I was unhappy about their care. After a serious car accident in July my daughter was refused help on two occasions and now has numbness and repeated loss of feeling in both legs. Her water sample was ' lost' on handover in hospital and not repeated and a Dr told her that even if they'd found blood in it they would still discharge her. The list is endless but the fabrication of symptoms dx has ensured my daughter will not get help even after a car accident. After being ill in March I had esr of 38, protein blood and leucocytes in urine.(on call Dr) Gp denied the blood and appears to have placed the same fabrication of symptoms on me which would explain why 4 Drs couldn't dx a broken rib despite looking at an x Ray with coughing up blood etc. This surgery has caused horrendous damage to my family.
Last edited by Paul_Howard
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