Can anyone with PSP help me please. I have just found out that my auntie who i am so close to has PSP and i am confussed to be honest

[sarahsolomon1957]

She used to be such a very strong women but she is now becoming a shell of the woman she used to be and it is heartbreaking. Can someone explain what PSP about and what is more than likely to happen. HELP PLEASE.

[SarahHeney]

Sorry but I don't know whst PSP is. Can you give its full name please?x

[Hidden]

"Progressive supranuclear palsy (PSP) is a rare brain disorder"

I'm so sorry about your aunt but I've just looked up PSP and I think you may be in wrong place because this is a nerological condition relating to Parkinson's and MS perhaps but not to Lupus. You will get more help from a forum dedicated to neurological disorders. I hope you can find the support you and your aunt so badly need.

[Cann]

If you go to this site it explains a lot about it and how it differs from Parkinson's

ninds.nih.gov/disorders/psp...

[Cann]

What is progressive supranuclear palsy?

Progressive supranuclear palsy (PSP) is a rare brain disorder that causes serious and progressive problems with control of gait and balance, along with complex eye movement and thinking problems. One of the classic signs of the disease is an inability to aim the eyes properly, which occurs because of lesions in the area of the brain that coordinates eye movements. Some individuals describe this effect as a blurring. Affected individuals often show alterations of mood and behavior, including depression and apathy as well as progressive mild dementia.

The disorder's long name indicates that the disease begins slowly and continues to get worse (progressive), and causes weakness (palsy) by damaging certain parts of the brain above pea-sized structures called nuclei that control eye movements (supranuclear).

PSP was first described as a distinct disorder in 1964, when three scientists published a paper that distinguished the condition from Parkinson's disease. It is sometimes referred to as Steele-Richardson-Olszewski syndrome, reflecting the combined names of the scientists who defined the disorder. Although PSP gets progressively worse, no one dies from PSP itself.