Hi, i am new to this, can anyone who has SLE and ... - LUPUS UK

LUPUS UK

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Hi, i am new to this, can anyone who has SLE and Fibromyalgia please get in touch.

sarahsolomon1957 profile image
7 Replies

I have Lupus and Fibromyalgia and would like to be able to talk to people who have SLE and or Fibromyalgia and share advice ETC

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sarahsolomon1957 profile image
sarahsolomon1957
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7 Replies
loopy-lou profile image
loopy-lou

Hi

Welcome to the site. I have found this site fantastic as everyone is so supportive as they understand. I have lupus, fibromyalgia, osteoarthritis (all diagnosed 3 years ago) & hypothyroidism.(diagnosed 17 years ago). How long have you been diagnosed?

Clairebear profile image
Clairebear

Hi. I'm new to this site too. Only signed up three days ago. Found some interesting stuff and it's nice to know that you are not alone. I've got lupus, had for 18 years now. Hope you find the site helpful x

Gillyg profile image
Gillyg

Hi Sarah, I have both of the above with a couple more, I have had my SLE for over 30yrs the others just seemed to come along with it. Do need information or I can just talk to you on here. It does help to have knowledge and some times just write down your feelings. I am 55 but feel a young 55 so fire away. keep well. xx

moss profile image
moss

HI I HAVE BOTH. I AM 36 WITH THREE CHILDREN

JSue profile image
JSue

I have Mild Lupus with Sjogren's and Fibromyalgia, 48, dx with first two about 10 yrs ago, fibro only just dx recently. Fibro pain really bad, have recently tried lidocaine injections (some help) and lidocaine patches (less help).

found this site very helpful -- lots of support to give and get :)

goldengirl101 profile image
goldengirl101

I have Lupus, Sjogrens, fibromyalgia, APS, rheumatoid arthritis, vasculitis, Temporal arteritis, Osteoporosis, osteoarthritis,I have had 2 major strokes & 5 t.i.a s plus a few others! I signed up on here a short while ago. I am more than willing to talk to you or listen if you want a shoulder!

Joyce

Purplesox profile image
Purplesox

I just signed up today too - don't really know how this works at all but am happy to give it a go! I have had SLE lupus for about 13 years, but was only diagnosed 3 years ago. I have 3 children, all boys, so quite demanding. Joint pain, exhaustion, pleurisy, Raynaud's and photo-sensitivity sums up my symptoms to date. Think I probably need advice rather than giving it; my main challenge being to bring up my boys (the eldest of whom is about to have heart surgery) and to try and get some money in, which seems beyond me. I'm glad to be able to connect with you, because sometimes I think it's very hard for even friends and family to fully understand what you're going through.

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