hello-i have a question

[moss]

have anyone been given lupus |? connective tiss disorder diagnosis without postitive bloods

[Lisafindlay]

Hi Moss, Usualy there will do blood test to reconfirm it is lupus, like my case they took biopsy of my scalp and blood test.

[Smiler1 in reply to Lisafindlay]

Hi Lisa :), was your blood test done separately to your biopsy? & do you know what test diagnosed Lupus (eg ANA test)?

[moss]

i ve had this diagnoisis for years , seconadery fibro, plus raynards but only had week positive ana i think it was

[janiceray]

Yes quite a few of us Lupies have not had positive ANA's so you are not alone

they work on a different criteria there is a list and you have to meet a number of aliments on that list.

Lupus U/K will have a leaflet on this i'm sure

[tiredmum]

I haven't had a positive blood test, but from pictures of my rashes, swollen joints, my intolerance to the sun, hair loss, mouth and nose ulcers, not forgetting the complete exhaustion, having confirmed sjogrens, raynauds and hughes, then i was told i def have lupus!!

such a relief after 10 years of not knowing

[Lupoid]

Serum negative lupus is quite a common starting point and the blood results will typically change over time.

I have only ever had one positive ANA and up until then it was diagnosed as UCTD.

The ANA only makes up part of the big picture, the clinical appearance is the other 99%