breathlessness

[tjperfick]

does anybody else here get out of breath? Ath the moment its worse whilst resting and also after things like having a drink and chatting. Any suggestions? cheers Julie xx

[daisyd]

Please make an appointment to see your Doctor today, if you haven't already xx

[Purpletop]

There are many causes varying in criticality - your doctor will be able to look at when this started, how often it occurs, what triggers it, etc and do all the relevant tests of heart and lungs to be sure there is nothing serious. Most of us experience this when dealing with lupus - I, for example, get breathless when I taper down from steroids, but to be safe it is better if you see a doctor.

[steadilymovingforward]

I get it sometimes and have been told it's linked to pleurisy or poss pericarditis...inflammation. Would definately get it checked out by doc to be on the safe side

Take care xx

[tjperfick]

thanks for all the rreplies - am going to docs on friday.forgot to mention that I do have a leaking heart valve so best to go and poked and prodded at. Blood pressure has also been a bit on the high side lately as well.

[steadilymovingforward in reply to tjperfick]

Glad you're going to docs. hope you feel better soon xx

[gazorpf]

Breathlessness and pain on deep breathing are common symptoms in lupus. There are a number of possible causes. Pleurisy, or inflammation of the lining of the lungs is one. Pericarditis, or inflammation of the outer layer of the heart is another. You could also have myocarditis or endocarditis, inflammation of other layers of the heart. This is a serious symptom. You do need to tell your doctor.

[Maureenpearl]

I have damaged lungs caused by the lupus or MCTD so I get breathless just talking or raising my voice and as for walking any distance outside it is not possible without getting breathless.

The pulmonary fibrosis (damaged lungs) was diagnosed in 2007 when the pain and breathlessness increased.

After having lots of test including for heart attack I was given the usual prednisolone and Metotraxate, which did not help and other drugs were given including Cyclophospamide several times but nothing has helped or even repaired the damage to my lungs and the breathlessness has got worse so now I am on portable oxygen and I am waiting for funding for a new drug that has only been given to eight patients so for.

Please go to the doctor ASAP as any breathlessness need investigating. Take care

[tjperfick]

thanks, I am going tomorrow. not feeling too great tonight, banging head and just feeling pretty rotten. At the point where I am not even bothered if they send me up to hospital, which I usually try and resist. Think I am heading for a flare at the moment, got lovely red rash coming up again on face(been there for 4 months and was just going to a healthy looking pink), high temp and swollen glands.