Can't Get Right!

[cassiegirl40]

Days like this make me sad. I feel like I'm here but not, too tired to move, and every muscle feels like jelly and life is passing me by. I try to fight but don't have the energy. Can't give up now any suggestions?

[Atibrat Moderator LUPUS SUPPORT]

Days like this and others with muscles so stiff and painful I can't move on top of no energy. Hang in there you will have better days. I understand how hard it is and you are not alone. Maybe talk to your doctor and need medication change. For me there are many days like this no matter what. Hot bath, some tea and extra rest. I try to listen to my body it usually is telling you what it needs.

[lupus-support1 Administrator]

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

It is very difficult when you feel too tired, too fatigued with muscle aches and pains, to function. It is not unusual to feel "sad" or depressed or even anxious about how our lives are going to be in the future. It is important that you talk to your doctor (GP) and rheumaologist or lupus specialist. It is equally important that you get psychological support which should be part of our overall care, when frequently it is not.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

[LatinZest]

I have been off work, I couldn't even drive Monday due to bad joint pain. I recommend reading a book, distraction really works for me, but avoid eBay because I bought a lot of things I didn't need jejeje. then I found this place and it is so nice to know you are not the only one in pain or housebound. One day at a time hun... hugs xx