Diagnosed with lupus: Has anyone been... - LUpus Patients Un...

LUpus Patients Understanding and Support

3,447 members1,274 posts

Diagnosed with lupus

deliverde profile image
3 Replies

Has anyone been told that sle will over the years, will burn itself out, was diagnosed many years ago affected major organs, blood vessels, blood, joints, and skin, initially treated with steroids, had flare ups, but now told it burnt itself out.

Written by
deliverde profile image
deliverde
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Manju-Manu profile image
Manju-Manu

Hi..my doctor had told me that if its a drug induced lupus it may go after some time..or with the effects of drugs we are taking it can go by its own..or else remission can be there for many years and could be misunderstood that its gone..since how long u dont have any symptoms?

Regards

Manju

lupus-support1 profile image
lupus-support1Administrator in reply to Manju-Manu

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

There are no general rules about SLE. I am happy to hear that your lupus is in remission and I hope will continue to be this way for you. If you have been told by your lupus specialist that in their view it has burnt itself out, then carry on with your life and be happy!

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

lupus-support1 profile image
lupus-support1Administrator in reply to Manju-Manu

Drug Induced Lupus (DIL) is not the same as systemic lupus erythematosus. When stopping the medication that has caused DIL, the symptoms will disappear after a period of time.

With good wishes,

Ros

Not what you're looking for?

You may also like...

Newly diagnosed with lupus...looking for lupus friends!!

hi. Im Tracey. 36 years old. I was diagnosed with lupus in september. I don't know a single person...

Retinopathy Risk in Lupus Increases With Longer Hydroxychloroquine Use

Hydroxychloroquine retinopathy in lupus patients. Katie Robinson October 1, 2019 The...

Mild Lupus

Hello everyone, I was recently diagnosed with SLE but I was told that I have mild lupus. I...

newly diagnosed with no support

Hi everyone. I was diagnosed with discoid lupus 2 days ago. I have had symptoms of SLE for around...

Living with Lupus

After last week and my daughter stopping her meds I managed to talk her in to taking them again. We...