About The COVID-19 Global Rheumatolog... - LUpus Patients Un...

LUpus Patients Understanding and Support

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About The COVID-19 Global Rheumatology Alliance:

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Our Mission:

Our mission is to create a secure, de-identified, international case reporting registry and curate and disseminate the outputs from that registry. It is our hope that the information collected will help guide rheumatology clinicians in assessing and treating patients with rheumatologic disease and in evaluating the risk of infection in patients on immunosuppression.

We are asking that clinicians use this site to report any and all cases of COVID-19 in rheumatology patients, including those with mild or no symptoms. We anticipate that completion of the case report form will take 5-10 minutes and no protected health information is requested. We plan to use the relevant information from these cases to provide expeditious updates to the global rheumatology community.

The success of this voluntary effort depends on our joint participation and the breadth of information collected. We ask that you share this site with your colleagues internationally and encourage reporting.

We were inspired by our colleagues in the IBD community who have put forth the helpful covidibd.org/ registry and urge anyone with information about coronavirus cases in patients with IBD to use the case reporting form on that site.

Thank you for your contribution to this important work.

The COVID-19 Global Rheumatology Alliance Team

SUMMARY

This registry is an international effort to collect information pertinent to COVID19 infection in patients with rheumatologic disease

The de-identified information collected in this registry will be shared for analysis

SOURCE: rheum-covid.org

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