New to this: I think it's great to have... - LUpus Patients Un...

LUpus Patients Understanding and Support

3,470 members1,290 posts

New to this

1 Reply

I think it's great to have a site people with lupus can share experiences, offer advise and support. It can be a scary place lupus. And no one really understands the fears you have or the low days. The tiredness for me is the worse along with stiff joints, makes me feel really low. It affects yr whole world and at the same time I try and stay positive by telling myself it could be worse. But stay positive people. X

Read more about...
1 Reply
lupus-support1 profile image
lupus-support1Administrator

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked Hunte!

What you have written is very like many with SLE.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

Not what you're looking for?

You may also like...

New and Unsure about me

Hi I am new here and was wondering about symptoms of Lupus. My doctor is sending me to a...
Tereslove profile image

Does anyone have cutaneous lupus?

I cant find anyone with this, without systemic involvement, even though I was ANA positive, and...
beks1977 profile image

Looking for new lupies for mutual support and understanding!

Hi there, I'm Suzy, I'm 23 and I've had Lupus for 12 years, I was diagnosed when I was 11 and was...
Bellaflowe profile image
Volunteer

Cold Sweats and flushing! Symptoms of Fever but No Fever! So uncomfortable! Anyone experience this???

I have a strange question and wonder if anyone else has experienced this symptom. I have always had...
momof15 profile image

Unsure if have lupus

Hi, I'd be grateful for any advise as I'm feeling really stuck. I saw gp back in sept as had been...
mrs_t profile image

Moderation team

lupus-support1 profile image
lupus-support1Administrator
fabwheelie profile image
fabwheelieModerator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.