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I think it's great to have a site people with lupus can share experiences, offer advise and support. It can be a scary place lupus. And no one really understands the fears you have or the low days. The tiredness for me is the worse along with stiff joints, makes me feel really low. It affects yr whole world and at the same time I try and stay positive by telling myself it could be worse. But stay positive people. X

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  • Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked Hunte!

    What you have written is very like many with SLE.

    We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

    By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

    When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

    Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

    I look forward to talking with you more!

    Sometimes we need to talk to people who understand and who are not family or friends.

    With good wishes!

    Ros

    Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

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