Weak Legs

[sassyz]

So I've had Lupus SLE for just over a year now, and only recently my legs feel so weak and basically I can't lift them without pulling them up with my hands, I have to sit to put pants on, and my legs will give way when I start walking upstairs, causing me to take one step at a time, making me look like a cripple, and I also can't get up from sitting on the floor without a deep struggle or my mum to help me get up. Is this apart of Lupus? Or maybe medication side effects?

[lupus-support1 Administrator]

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

I am sorry to read about this and understand how debilitating this must be for you. IMHO, I think you need to see your rheumatologist as soon as possible so that an assessment can be made. They need to determine what this weakness is caused by.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

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Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

Wishing you a happy and healthy 2015.

With good wishes,

Ros

[Atibrat Moderator LUPUS SUPPORT]

Ros is right call your doctor right away. My legs and arms get weak often and they feel like they turn into wet sand bags but I have never had to pick them up with my arms. I have another auto immune disease besides the lupus that effects my muscles.

This is something I would call your doctor on asap. Let us know ok? It probably is related but one of those let's get it checked right away symptoms.

Hugs

[Cookiecutter76]

Hello. I'm sorry to hear you feel this bad.

I've only recently been diagnosed with SLE, having been ill for the last 25 years with what had been diagnosed as Chronic Fatigue Syndrome. In the past, I've been as weak as you've described and have frequently found it difficult to get up stairs without legs buckling. In good years however, I can hill walk for miles! I'm not sure what the cause is but its not medication with me and is something to do with the illness. The first thing I noticed when I started taking steroids a few months ago was the pretty much instant improvement in the strength of my legs.

Best wishes!

[lupus-support1 Administrator in reply to Cookiecutter76]

Your story is not, unfortunately, uncommon. Suffering for 25 years because doctors are unable to recognise and diagnose SLE. If corticosteroids helps, this shows that it is inflammation and not chronic fatigue or fibromyalgia, which could worsen as a result of the corticosteroids.

With good wishes,

Ros

[sassyz]

I'll have to email my doctor and arrange a sooner date for my appointment, because now my fingers are locking up and I can't move them.

[Hidden]

May I ask what medications are you on? It could be side effects from the medications or it could be the disease process. (I do have the same issue!!) Dreadful!