I am 23 years old and was diagnosed with SLE lupus last year, after many years of struggling for a diagnosis (not entirely sure they even got it right). I have to work full time hours to make ends meet and it is taking a serious tole on my body. My work does not understand and neither does my family or friends.. I feel like I have no support or anyone on my side to talk about this. My Dr. has not done anything for me since my diagnosis... I have been going to walk in clinics for prednisone to try and help my flare ups. It seems never ending. I have tried plaquenil when first diagnosed and it made me very dizzy to the point I was falling over and nauseous where I couldn't eat. I need some advice on how to deal with it, or even just someone to relate to. I just found this website this evening and it makes me happy to know it exists.
If anyone has any tips or any idea on how to help please let me know, thank you.