Brain mets?

[BellaBe]

Hello

Is there anyone on this forum who has had a brain met removed by surgery?

I am asking for personal reasons.

Many thanks for replying x

[Draigo]

Hi BellaBe,

I had 2 brain mets surgically removed in 2021 they were about 8 cm big and I had a midline shift due to the size. I recovered from the surgery very well with no cognitive or mobility side effects.

I am happy to give you more information if it would be helpful.

[BellaBe in reply to Draigo]

Thanks for your reply. Much appreciated.

I have 4 brain mets which I had SRS to in 2021. It was pretty much a success but I’ve had ongoing slight progression with the right occipital met and they are now thinking about removing it surgically. My lung cancer is currently under control so the one met is my issue. The thought of having brain surgery really freaks me out so I was hoping for some more information to hopefully reassure me.

Thanks again for replying x

[Chichimum in reply to Draigo]

Hi, I have had the same brain Metz removed twice in one year, it suddenly grew again to the size of a golf ball, I seen th surgeon one day and he operated the next day, I recovered quickly and have only had slight side effects, memory issues and numbers, which tbh was never my strong point. It’s growing again so I’m on my 3rd chemo to try and slow it down. Good luck warrior

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Hello Bellabe,

I am sorry to hear that you are concerned about Brain mets this will understandably be causing anxiety.

We have a booklet on this subject which is very informative with good information on what to expect ant types of treatment including surgery

roycastle.org/app/uploads/2...

If there is anything else you would like to discuss you can email ask the nurse at [e-mail] or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600

Kind regards

The Roy Castle Support Team

[Elt79]

I had two brain Mets treated with SRS in 2018 then again following some re growth in 2021. Surgery never discussed am currently being monitored as there are changes in MRI since September but they saw regression on last MRI due a further one on 24Jan my 4th since September. My primary lung cancer still NED for 3 yrs now - had two years of immunotherapy which finished Nov 2020. Brain Mets continue to be my issue. Wishing you all the best x