Looking for someone who has similar metastatic lung cancer which has spread to the chest wall and some lymph nodes

[Torri2]

Hi, I have just been diagnosed with metastatic lung cancer which has spread to the chest wall and some lymph nodes.. I am still waiting for a treatment plan..I hope🙏🏻

It was such a shock as been so healthy with no illness in my life! Waiting to hear is the worse! So frightened of what they are going to say.. trying to stay strong but it’s so hard.. I’ve been told that once they start me on a treatment I will feel better..

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Dear Torri2

Welcome to the forum, and sorry to hear of your diagnosis. This must be quite a shock for you, especially as you have been in good health.

It is such an anxiety waiting to hear for results and what treatment plan there will be. Thankfully, lung cancer treatments have improved greatly in the past ten years with new treatments of Immunotherapies and targeted therapies.

We have a range of information booklets from diagnosis to the different treatments and living with lung cancer, which can all be found on this link:

roycastle.org/help-and-supp...

There are many encouraging accounts from those who have experienced the same as yourself and you can find these on this link: roycastle.org/campaigns/lik...

Hope you hear from others in the forum, where you will find support and encouragement.

We have online support groups through zoom and you can register through this link if you are interested: roycastle.org/help-and-supp...

If there is anything else you would like to discuss you can either email us at [e-mail] or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600

Kind regards

The Roy Castle Support Team

[sassassas]

Hi Torri2 So sorry to hear about your diagnosis but welcome to the forum. There are many people here with similar experiences, and I'm sure you'll get lots of great support. Its actually my husband who has metastatic NSCLC - he was diagnosed (like you, completely out of the blue) back in March. He had chemo + immunotherapy and now continues with the 2 immunotherapies. If you met him, you would have no idea at all he has cancer and we would never have imagined it could be possible for him to feel so well - but this is the case for many people now with the new treatments available.

There are lots of people here with advanced disease, and lots of experience with chemo regimes, targeted therapies, immunotherapies, radiotherapy. I guess you're still waiting for genetic mutation results and biopsy results? Once your team have these, they'll be able to recommend the best treatment plan for you. The waiting is horrible, but it means you get the best treatment 1st and it does get easier when you know what your plan is.

Best wishes to you,

Sarah

[Torri2 in reply to sassassas]

Thank you so much Sarah for your reply! You have made me feel so much better!! Yes the waiting is so difficult, but trying to keep strong.

Vicki x

[SoniaHope]

Hi Torri2 - so sorry to hear this. I am currently going through this same diagnosis with my mum. She was diagnosed in November last year and had a Per scan, MRI and a couple of other checks. Tomorrow we have an appointment with the consultant to discuss treatment. We have already been told radiotherapy is not an option as it’s spread into the other lung and some lymph nodes. The waiting has been so hard and we are in a constant state of anxiety. She really just wants to get her treatment started but with Christmas and the delays and backlogs due to Covid the wait has been a long time.

Sending you good luck and best wishes

[Torri2 in reply to SoniaHope]

Hi SoniaI am so sorry to hear about your Mum, I went to see my consultant yesterday but not all the results have come back yet, so more waiting! Could be another 2/3 weeks.

They have told me to go out and enjoy as many days as I can before I start.

It’s going to be a long journey, and I too with my family are very anxious, I hope your mum is not in too much pain that she can fill her days with a few nice things, please tell her I am thinking of her.

Sending her so much hope and luck

Vicki

[Palpman]

My wife was diagnosed with NSCLC in the top left lung. Size is 4cm and it has spread to 2 lymph nodes.

She was to start radical radiochemo last week but they found the cancer had spread to the pleura

Now she is on palliative radiotherapy for 12 sessions only.

We are devastated at this news and taking it day to day.

[Torri2 in reply to Palpman]

I am so sorry 😢