Dacomitinib for lung cancer

[GUI-19]

I have been prescribed this targeted therapy however as it was only approved in August 2019 am the only person on it as far as I know.

Is there anyone else out there who is taking this drug?

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

Dear GU1-19

Welcome to the forum, where you will find this a place of support and encouragement.

As the support team have been in contact with you in relation to this, we do hope that you will receive a reply from someone who is on this medication and you can share experiences on this.

If you wish to discuss anything further you can either email us at [e-mail] or our freephone nurse led helpline number on 0800 358 7200

Kind regards

The Roy Castle Support Team

[Denzie]

While I am not on this therapy I’ve made it a point to learn all I can in the 9+ years since my stage 4 diagnosis. I’ve been educating myself against the time that I experience progression.

One important thing I’ve learned is that they don’t go backwards on treatment. You’ve been given this drug because it was proved in clinical trials to extend life with better quality than the generation of treatments that preceded it.

Another thing I’ve learned is that your National Health System is a bit more conservative about approving treatments than the system here in the US. Therefore, it takes more time and data than the Fast Track system of approval here.

Sending hope that this medication works well for you and I hope you connect with others who are on it. Since it is a relatively new drug you should report anything that might be a side effect.

[Bow-19]

I wondered if you have tried the US Inpire website and asked the same question