We have been contacted by Boeringer Ingelheim, they are are looking a patient and carer perspective on nutrition.

[NicF4]

Boeringer Ingelheim would like to ask participants and their contacts and members for content ideas for recipes and discussion topics

o Examples:

• Good recipes for chemotherapy patients (e.g. feeling nauseous, calming mouth ulcers) and foods to help people that may suffer from side effects (e.g. combatting diarrhoea or foods to avoid which aggravate skin conditions)

• Combating fatigue

• Boosting immune system/ staying healthy, avoiding malnutrition

• Avoiding constipation

- What focus areas would most benefit patients to learn more about?

- Do you have any existing nutrition resources BI could link the project to?

Please comment before 16th May.

[Hidden]

I would look into almond milk when I sufferd resporty distress from candies fungus over growth well I could breath again Throat had resolved enough to get ant fungus meds.

fungus infections I think are cancer precursor’s SO naturally occurring remidies well is better than nout and not as toxic.

After lots of research almond milk contains trace eliment of iodine CLEARLY iodine is toxin to throyride gland THATs why it’s not used medacaly.

Clearly like I found in moderation can be handy tool.

Also given I had to build up my own immunity after 3 years of constant infections and antibiotics I found Bifidobacterium lactis BSO1 AF

Vitamin B

Fructo-Oligosaccharidrs help me rebuild my sterilised immunity help with nutrition intake.

Also if that would not of worked did cross my mind about eating healthy human fecsis.

Not really nice thought but given no immunity WELL my mortality I valued more than pride.

journals.sagepub.com/doi/fu...

[Tapdancer]

My mum has been drinking kefir since she started chemo. She finds it helps with constipation, plus it's full of B12 which can get low during chemo. She also drinks Symprove, a probiotic. Trying both products to see if they have a positive effect on the immune system.

[JanetteR57]

I found eating fruit particularly citrus fruit immediately after treatment was good and whilst poorly as it cut through the metallic taste that affected everything I ate. Little and often is what I'd suggest - whatever it is - as large meals just seemed too overwhelming. when you're struggling to breathe, chewing/eating take a much lower priority in your life than at other times so the food has to be appetising, tasty and I found warm/hot foods easier to tolerate than cold. I steer away from dairy especially full fat milk/yoghurt as often find it increases mucus when I have chest infections but regularly have skimmed milk in porridge, drinks etc. (calcium important due to steroid medication). Avoiding constipation is a difficult one - most of the painkillers cause this - and extra fruit/veg/water/moving about sometimes doesn't shift it.

Post treatment I ate much more healthier after reading 'anticancer a new way of life' recommending reducing processed foods/sugar in favour of wholesome foods, cooked from scratch and trying to introduce such elements as cinnamon, turmeric, curcumin, leafy vegetables, and to ensure a balanced diet. Also found I had more energy by reducing processed carbs (not eliminating them) and relying on fruit/veg for carbs. Keeping hydrated (water is good enough) is also important.

I know of several information sources/studies going on about nutrition and cancer but not specifically lung cancer as I often comment about how inappropriate such recipes are in my experience.

For me, a main area of focus is that keeping active/recovering mobility can do so much more for lung cancer patients but often fear of getting breathless can lead us to sit about more so the weight piles on, not helped by steroids and then makes it harder to breath as our lungs/heart have to cope with greater weight. However I and others have proven that even after lung surgery, we can recover, regain or even create fitness by gradually increasing activity/mobility over time and go onto have better breathing capacity than before diagnosis.

[Surviventhrive]

I have two suggestions:

For fatigue, even though it is counter-intuitive, get some exercise! The more the better. You do have to push yourself to do it, but you'll feel better for it.

For constipation: make sure you drink plenty of water. I found that the only way I could make myself drink water was for it to be filtered and poured over ice that we bought from the Sonic hamburger place. Ice made in our own freezer made my stomach turn. Exercise will probably also help with constipation, provided you are staying hydrated.

I suffered mightily from constipation because I had so many issues with drinking water. I started taking stool softeners to help keep things moving, along with making myself, no matter what, drink water.

For diet, my recommendation is to eat. Whatever your stomach will allow you to eat, that's what you should eat. IF you aren't severely nauseous, eat healthy, but if you are, eat whatever you are able to eat. I could eat nothing for several days after treatments. We always knew I was coming out of that cycle's sickness when I came in and asked to go to Furr's Cafeteria that night. I craved their roast beef when I finally felt like I could eat.