Hi, I am new to this site, I was diagnosed in July 2014 with NSCLC. I had four cycles of Cisplatin/Pemexetred which shrunk my main tumour by 75% and the cancer dissapeared from all the lymph nodes it was in. I was on pem maintenance for 16 months which kept everything stable. In April this year it was found after a scan that it had stopped working and started growing again. I was offered Docetaxel/ nintednib but asked if i could have either imunotherapy or some other targeted therapy instead. I was sent to the Christie in the hope of joining a trial but was told on arrival that the trial was full. I was told that there are a couple of trials i can be put on a waiting list for but they need a biopsy sample from my main tumour. As this is only 0.9 centimetres at the moment my doctor is asking both the radiographers at Leeds and at the Christie if anyone is willing/able to take a biopsy from something so small !!
My oncologist also said they were waiting for a new immunotherapy drug to be released for general use but i forgot to ask what it was called. she is hoping to have my biopsy done in the next two weeks as she said she doesnt want to wait longer than six weeks before starting me on some kind of treatment.
I am feeling sad at the moment as i really want the imunotherapy rather than the chemo combination and because i dont have private medical insurance and no savings to pay for the immunotherapy then i cant have it.
I just feel that these new treatments are sat on for too long because of the cost and should be available to all. What are other peoples thoughts on this.