Hi all, thank you for your replies to my last post regarding "chemo brain". Here's an update - my husband was very confused, absent minded and fatigued over Christmas. I was worried that the cancer (squamous nsclc stage IV) had spread to his brain. We spoke to the clinic early January and they did a brain scan. Turns out he had a small stroke, apparently a bleed rather than ischemic. My reading suggests it might have been caused by his low heamoglobin / platelet count. Does anyone have any experience of this?
Anyway, this is good news, how bad do things have to get that you tell people "good news, it's a stroke"!
So...more good news, he's been invited to take part in a Nivolumab trial. My research seems to point to this being the best available treatment with excellent outcomes. I won't believe it until he's sat in the chair with tube in his arm. I expect everyone feels this way, you get the hope knocked out of you a bit.
Next questions, for those who've read this far...
- Is anyone else on a Nivolumab trial?
- What is your experience, has it helped?
- What side effects have you had?
Sounds like an exam question, sorry, just trying to get as much info as possible. We've said yes to the trial but I think firsthand info from the community would really help my husband.
Thank you all for your responses to my last post and your kindness and concern.