Hello I got my results yesterday An Iv'e got a rare disease Its called LANGERHANS CELL HISTIOCYTOSIS Iv'e prob always had it but it goes in remission sometimes trying to understand it at mo its something to do ith my white blood cells i make to many so they can cause lung lesions or affect other parts of the body all my symptoms even the little scars that come an go over my skin are to do with it the tiredness aches bad memory breathless is all part of it they are going to send me for reg check ups to make sure it dont get any worse if that happens they treat it ith chemo or radio the lesions can become malignant but their not at the moment yaeh lol they said its usually in children not someone my age so think ive alway had it thats why ive been ill on and off all my lifes a rare disease involving clonal proliferation of Langerhans cells, abnormal cells deriving from bone marrow and capable of migrating from skin to lymph nodes. Clinically, its manifestations range from isolated bone lesions to multisystem disease. LCH is part of a group of clinical syndromes called histiocytoses, which are characterized by an abnormal proliferation of histiocytes (an archaic term for activated dendritic cells and macrophages). These diseases are related to other forms of abnormal proliferation of white blood cells, such as leukemias and lymphomas. has anyone here got this ?
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