Cancer and You Event - Wythenshawe Forum

[OllieScott]

Affected by lung cancer as a patient, carer, relative or friend? Do you live in Manchester? Roy Castle Lung Cancer Foundation is looking for a patient representative who would like to come along to the first Macmillan Cancer Improvement Partnership ‘Cancer and You’ Event. We would like the person to hold an information stall at this event. Going along to the event, you will:-

• Visit health and wellbeing information stalls.

• Learn about the Macmillan Cancer Improvement Partnership.

• Share your cancer experiences.

• Learn about cancer services in Manchester.

Your support of this event would be hugely appreciated. If you would like to attend, please contact Ollie at Roy Castle Lung Cancer Foundation for further information. Email: [e-mail] Tel No: 0333 323 7200. The event is being held on

Date: Thursday 19th February 2015

Time: 9.30am – 2.30pm

Where: Wythenshawe Forum (main hall)

Best wishes,

Ollie

[TrishLamb]

I would love to go but not able to travel that distance, due to panic attacks after my husband past last month. I would like to point out the LACK of support from MacMillan as soon as my husband past away. Three phone calls I've had, asking if I'm ok. What am I supposed to say??? I also stressed I needed help to comfort my young children. . . . I feel abandoned by them!!! There needs to be a huge improvement on the family wellbeing not just whilst they care for their dear lived ones but also if something happens.

[Hidden in reply to TrishLamb]

Dear Tricia,

Have you been offered any form of bereavement counselling? If the Macmillan nurse isn't able to offer support, then they s/he should refer you to a service that can. You and your children certainly need continuing support at this difficult time. Please don't hesitate to get in touch with us on 0333 3237200 option 2 and we will put you in touch with someone who can help.

Best wishes,

Beth, on behalf of information and support.

[TrishLamb in reply to Hidden]

My GP has refereed me and the kids to cruise. But feel a bit DITCHED. By MacMillan.

You go from having a MacMillan nurse in once a day, GP once a day, carers coming in four times a day and Marie Curie coming in from 10pm-7am to NOTHING! I know they were there to look after my husband, but I am now left with NOTHING. I phone call once a week asking if I'm ok, to which anyone and everyone would reply yes I'm ok, I think. I reality it's lonely and need support, not from family or friends but from professionals. Now after 3 weeks even the odd call has stopped. It's just when my brother in law past away, the Macmillan nurse worked with his son before the funeral and even came to the funeral and say with him for support. Which was a great comfort. To them. Is it just that it is a different health authority or is it just that she was very understanding to a young families needs.

[Hidden]

Hi Tricia,

I understand how it must feel when you and your family were getting so much support, and now you have very little. Its very important that you are honest with those who are in the position to offer you help, as if you say that you are coping, they are unlikely to contradict you. There may not be a uniform policy with the nurses, and some may get more involved with families than others. If you tell us your location we can have a look at what services in your area might be useful to you. I hope that your referral to CRUISE brings you an appointment soon; if not please do re contact your GP and see if S/he can get things moving for you.

Best wishes,

Beth, on behalf of information and support.