NED: I was diagnosed June 2017 NSCLC... - Lung Cancer Support

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NED

Lovey1000 profile image
17 Replies

I was diagnosed June 2017 NSCLC 2017 removed right lung and it spread to brain and removed tumor as well as a few Mets very small, my latest scan after a reoccurrence in the lymph node in chest showed clear after 3 rounds taxol

So now I did mri and ct of chest and I’m disease free!! Will this last I’m shocked or will it come back??? How do I remain cancer free?? I am a KRAS mutation as well

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Lovey1000 profile image
Lovey1000
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17 Replies
rdflynnjr profile image
rdflynnjr

That is great news. Enjoy it now. Enjoy it well. The future will come whether you worry about it or not. Take today and make the most of it.

Rick

Denzie profile image
DenzieModeratorVolunteer

Congratulations! The cancer is going to do what the cancer is going to do. You can control how you handle it but you can’t control the cancer.

Best thing to do is eat a balanced diet. Get some exercise, even just walking a bit is good. Stay atop your follow up tests. These things will give you your best chances.

Lovey1000 profile image
Lovey1000 in reply toDenzie

Thanks so much!!!

JanetteR57 profile image
JanetteR57

Fantastic news. Hope you've celebrated this. Now go and live your life... you may find the book 'anti-cancer ,a new way of life' by Dr Servan Schreiber helpful.

Getalife18 profile image
Getalife18

So happy for you; I’ve read so many studies and there seems to be kinks to all kinds of cancer with sugar intake. Not that I am any way claiming expertise. I’m just a nurse, but your fight and your attitude which seems wonderful is what I’m sure is giving you the results. Keep it; Congratulations.

Take care

Ncpoet profile image
Ncpoet

Congratulations! Celebrate! Enjoy each day and don’t worry about tomorrow. You are a survivor. So happy for you!

Judy

ThePurplePlace profile image
ThePurplePlace

Congratulations! Get out and live life!

Iamready profile image
Iamready

Very, very happy for you. Enjoy!!!!

Congratulations! No one knows what the future holds for any of us. All you can do is take each day as it comes, and enjoy life.

PegD profile image
PegD

Congratulations! Live today for tomorrow will take care of itself. 🎈

hedgehoggy profile image
hedgehoggy

Fantastic news!

Best wishes

Hoggy

Peyz33 profile image
Peyz33

Denzie and I have both been here for many years so whatever we are both doing seems to have worked - I didn’t change one single thing - I still eat red meat - sugar - white rice / wheat - my friends who are health “conscious” cringe at what I’ll eat. Potato chips - ice cream - chocolate 🥰 I don’t drink and I don’t smoke or do any drugs. I had my right lung removed in November 2007 I had NSCLC stage 3a - 16 weeks of chemo and still here. So I’ll agree with my girl that the cancer will do what it will do - and my advise is to just live - LIVE- I was so paranoid for 5 years waiting for the other boot to drop - thank goodness for a great shrink - enjoy every minute that you feel well - and good luck - NED is a great thing!!!!

Lovey1000 profile image
Lovey1000 in reply toPeyz33

Is it normal for my bones and joints to ache 24/7 ? I take Motrin but I really feel it in the am and before bed, after 3 rounds of Taxol and in remission this what I suffer from, my mri and scan is scheduled for October 22 and I hope I’m still clear but my aches are killing me I guess Taxol causes this joint pain. Any advice?

Bayside1 profile image
Bayside1 in reply toLovey1000

Hi Lovey,

How did your scan go? Did the doctor offer any solution for your joint & bone aches?

Lovey1000 profile image
Lovey1000 in reply toBayside1

Thank you for asking, had a mri in July and scan everything negative woo hoo now yesterday I had mri to check any Mets so I’ll know the 29 th my next dr appointment but I will say I did Taxil

3 rounds and it was something else, yes it killed the cancer but my bones hurt all the time, I take hot bath every night and 600mg Motrin twice a day for the pain, pelvis elbows knees ankle omg sire constant but like I said the taxol attacked a lymph node that reoccurrences after brain tuner removed so I had since June 2017 Lobectomy right middle and top lung 30 days radiation then I was cool for a minute then my brain, now I’m Ned unless after the 29 doc say it came back and if it did well time to get my dupes you and fight and I’ll keep

U in tune

Bayside1 profile image
Bayside1 in reply toLovey1000

You’ve been through it all! My goodness, I admire your strength & I hope your follow up goes well. Scan-xiety is my downfall.

Lovey1000 profile image
Lovey1000

I love that and I’m just like you, no smoking or drugs or alcohol just red meat sugar chocolate and ice cream lol

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