Compression: Advice please! I've just started wearing... - LSN

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Compression

Loobs profile image
25 Replies

Advice please! I've just started wearing compression thigh high stocking 24/7 and managing well with it however I keep waking during the night with a pain just under my small toe. It doesn't bother me during the day but each night it's becoming more painful :(

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Loobs profile image
Loobs
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25 Replies
Zezes-nan profile image
Zezes-nan

Hi Loobs, I had a similar sensation when I first starting my knee high compression stockings and I had a seering pain under my big toe. The Doctor said it was the muscles and bones settling as the fluid had dispersed and I was told to take pain killers it seems to have settled now but I only have to wear my stockings during the day and was told to take them off at night.Hope you can sort it out and the pain settles

Loobs profile image
Loobs in reply toZezes-nan

Thanks Zezes-nan! That does make sense and painkillers are helping. Last night I slipped a very thin piece of cotton pad just between the stocking and my foot and it helped a lot. Thanks for your advice :)

LymphSuppNetwork profile image
LymphSuppNetworkPartnerLSN

Hi Loobs

It is very unusual to wear garments 24/7 might be worth checking this out with your therapist.

Loobs profile image
Loobs in reply toLymphSuppNetwork

Thank you! It was definitely 24/7 to see how much my leg will reduce as I've not had any treatment for a very long time but I will discuss at my next appointment .

lisa28 profile image
lisa28

hi there

i had the same and it turns ut the measurements had to be altered, now no probs x

Loobs profile image
Loobs in reply tolisa28

Thanks Lisa28 if it still hurting I will mention at my next check up but getting better each day at the moment :-)

demoness profile image
demoness

Is it unusual to wear compression 24/7 @ LymphSuppNetwork?? I was told to wear mine 24/7 for 365 days a year...I thought this was the norm,,,

LymphSuppNetwork profile image
LymphSuppNetworkPartnerLSN in reply todemoness

Yes it is very unusual - most people only have to wear their garments during the day and remove at night, then moisturise the skin overnight - the exception is during periods of bandaging or intensive treatment. But saying that everyone is different so assuming your advice is coming from a lymphoedema specialist then don't change it without discussing it.

demoness profile image
demoness in reply toLymphSuppNetwork

My Lymphoedema is very severe,,legs actually kinda exploded as swelling was so bad and as i also have lymphatic disease I became real ill and full body infection set in,,I have had long stays in hospital..last stay was 5 months,and I see skin specialists..cardio vascular team..lymph nurses and doctor and district nurses,,I really thought everyone had to wear compression 24/7..thank you for reply about that..yes..I always follow the advice my specialists give me,,thank you for concern about that.. :)

alfie19 profile image
alfie19 in reply todemoness

Compression stockings should not be worn at night in bed. Only wear in the day.

Give your legs a rest at night and ask your Lymph Clinic or Nurse to prescribe you Cir-Aid bandaging with velcro straps these can be worn day or night and in bed .

Gypsygirl2402 profile image
Gypsygirl2402

I am in thigh high compression bandages both legs, am suffering with a lot of pain and my toes are quite swollen, they look like they are ready to burst!!

LymphSuppNetwork profile image
LymphSuppNetworkPartnerLSN

HI Gypsygirl

Speak to your specialist about toe caps - this may stop them being so swollen and painful

fozdrummer profile image
fozdrummer

I've been wearing full length stocking for 15 years now with a calf length over the top. I'm not supposed to wear anything overnight as it can be dangerous with clots and stuff but I found that i can use an older worn stocking that has lost a lot of it's compression at night and save my newer ones for day use. It works and I don't get the pain at the foot associated with a new high compression garment. When they get even older I use them for swimming in! My lymphoedema nurse thinks I'm nuts but agrees it works.

Loobs profile image
Loobs in reply tofozdrummer

I've only got 2 at the moment but hope they loosen with washing! I'm going to Tenerife in 3 weeks and wish I had an older stocking for swimming but as I'm wearing them 24/7 I don't thing it would be too hygienic wearing them in the pool so think I'll have to give swimming a miss this year :(

fozdrummer profile image
fozdrummer in reply toLoobs

Don't think I've ever thrown any away. I have a few that I've cut the foot bit off so I can use them in karate training when I need to grip the floor barefoot. They aren't comfortable for long but do a job. they do eventually disintegrate! You can try swimming without...the haydrostatic pressure can help

lovesradio profile image
lovesradio in reply toLoobs

Hi Loobs with love I suggest u wear one of the two you have for swimming and pester ur health professional for a third stocking. I'm suggesting this as my physio says that swimming with compression garment on is a double win - water pressure good for affected limb on it's own, boosted by wearing compression sleeve. And it's muscular action!!

Loobs profile image
Loobs in reply tolovesradio

Thanks loves radio! I have decided to do this as I think the pool will be too enticing and have read that swimming is good for lymphoedema. I have also managed to get an appointment as the stocking is still giving me foot pain in the same area so suspect it may be too tight.

lovesradio profile image
lovesradio in reply toLoobs

Good luck with appointment and getting stocking changed xx

1031959 profile image
1031959

Hi

I have been wearing compression for 32 years. For the last 6 years I have to wear compression 24/7 but I wear flat knit (4) during the day which cause the same problem with my small toe, but I have to wear a round knit less compress (2) at night this helps stop the pain. I also have to make sure I moisturise at night and in the morning as the skin takes a bashing on the side of my little toe. Hope that helps

Loobs profile image
Loobs in reply to1031959

it's weird why it doesn't hurt all day but the pain in my foot wakes me up every night? I was reading about Jovipac night garment that looks quite bulky but comfortable so I might ask about that or something similar x

Loobs profile image
Loobs

3rd stocking arrived this morning. Its longer on the foot so will try wearing overnight tonight. Best thing is that I now have a spare stocking that I can use on holiday as off to the sun on Saturday...Who knows I might even venture off to the waterpark this year if I feel confident enough wearing it.

harpy1 profile image
harpy1

I wish I could get Duomed stockings they were wonderful (knee length) but chemist says they no longer do them. My existing stockings are now so laddered I am sure they dont do much good. I need to see nurse to get some more, but last time they gave a different make and I could not get them over my heel let alone over my swollen leg!

Have a great holiday Loobs and GO FOR IT! Once you are in the water no one is going to notice whats on your leg. I must start swimming again, had not realised it was good for this condition. Perhaps I should be referred to a specialist nurse too.

Christo profile image
Christo

Have you been issued with an Actiglide to help slide on your compression garments? Extremely useful for people like me who cannot bend . . .

activahealthcare.co.uk/pdfs...

Cheers

Christo

Loobs profile image
Loobs

Yes I was given one Christo but so far not needed to use it as I am managing with my lovely yellow rubber gloves :-)

shirty67 profile image
shirty67

hi ya i wear my compression garment during the night only trouble is sometimes a gap appears and a build up of fluid i wake up adjust the garment over the fluid then about every 50 minutes i have to go to the toilet i so really tired

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