Hi,
I was diagnosed with Lymph and Lipoedema in October in both legs. I showed the Lymph nurse my arms as well as the upper arms are definitely disproporitionately larger and they are heavy and achey. Her response was "you can have compression for those as well if you like". I said no as I didn't fancy having all that to deal with at once.
So, should I be avoiding vaccines (obviously thinking about C-19 at the moment) in my arms?
I am also concerned I might have more general lymphoedema as my tonsils were very large until I was in my early 20s, I have lymphatic colitis and when I was born I was checked for congenital adrenal hyperplasia and I'm now wondering whether that was genital oedema. Do I need to push to have this investigated before having the vaccine too?
Many thanks
Talk to your lymphoedema clinic or GP.
I have talked to my GP who (understandably) wasn't sure about doing anything given the current situation - though I didn't mention vaccine query as I've only read about it since. So I'm wanting to know exactly what I'm asking for before I contact the clinic
If your GP isn’t sure, then talk to the lymphoedema clinic.