Help please
After having Lymphedema since 2006 I think I seen the Lymphoedema nurse 6 times in that time she just didn’t want to know.
The problem I got now is I started to gain weight I put on 1 and a half stone since the new year been to doctors 3 times they now say I got diabetes type 2 which is under control and my weight gain is due to my Lymphoedema.
I never see any post on health unlocked about weight gain due to Lymphoedema.
Any help would be nice.
Where are you based?
Do you have primary or secondary lymphoedema? Arms or legs?
Do you wear compression?
Are you seen regularly by the diabetic clinic?
Birmingham uk secondary both arms to elbow both feet and legs up to knee yes I wear wraps
Yes I saw then today and as my weight gone up she blaming my Lymphoedema which I had since 2005.
Thaxs
How regularly are you reviewed for compression?
Secondary in four limbs? Did you have cancer treatment prior to the diagnosis?
Have you been given lots of info on how to manage your blood sugar levels? Are you taking Metformin?
Not been seen since 2015 then it was for 4 minutes she a waste of time going she just don’t want to know about my Lymphedema yes secondly on all 4 limbs ,no I had lung cancer in 2015 but everywhere else was clear, yes I had lots of info on managing my blood sugar I got right down now no cakes no choc on crisps no white bread.yes I on 2000mg metformin a day,
Thank for your reply
Who provides the compression? Are they given to you on repeat prescription by the GP? I agree with other contributors - you need to be referred to a different lymphoedema service - or a letter of complaint needs to be sent to your current provider, from your GP.
Have you spoken to your Diabetic Nurse about the dosage of metformin - it can cause swelling in feet an ankles when first prescribed. How often are you being monitored or do you do it daily?
The new year was the last time I got new wraps the district nurse measured me as the clinic didn’t want to know I been in touch with Lsn and they are going to send information out for me I will do a complaint,
I talked the doctors and diabetic nurse about the dosage only to be told they right and I should be taking another tablet as well the last time I was monitored was June on last blood test.
Thank you
Check out L-W-O Community on here as I belong to that group.
Sorry your nurse was not helpful or caring sending love x
Just had another thought...
If (after GP has ‘had a word’) & clinic is still intransigent is there another clinic in the area GP could refer you to? I’m in middle of Suffolk (nearest clinic 13 miles) but Essex & Norfolk (26 miles) have specialist clinics.
You have the right under NHS to go wherever you like for treatment.
Hi thank you for your reply
I talked to gp there is no other clinic around here I did try a few year ago but it a post code lottery, where I go I not been since 2015 when I got lung cancer to see if the Lymphoedema would get worse but she didn’t know,
It’s a never-ending circle ‘out-of-area’ as I know some hospitals will only accept referrals from own area except for hospital referrals.
It all comes down to funding - I believe hospitals claim back treatment costs from area of referral.
I’ve had battle with GP surgery over cream I use on my arm. Clerk replaced Diprobase with something else (which is cheaper by pennies). Told Lymphoedema clinic & they emailed surgery telling them to prescribe QV cream (which is more expensive than Diprobase!) There goes the logic behind saving pennies lol
Good for you that your clinic is more caring love and hugs.
Check out L-W-O Community on here as I belong to that group.
Will do. Won’t be around much now - busy packing; off to Edinburgh for 3 weeks to catch Fringe Festival
Hi I'm based in Hayes, Middlesex UK.
I have Lipolymphoedema from the waist down. I have ankle to knee compression wraps but can't always get them on. Mine is Primary.
Ask your Lymphoedema Nurse for Velcro Wraps they are much easier to get on