Where are you based?

Do you have primary or secondary lymphoedema? Arms or legs?

Do you wear compression?

Are you seen regularly by the diabetic clinic?

I've had same problems - my job takes me to Europe so I started adding a visit to a local clinic into appointments. This has worked a treat as European doctors don't have to fill in forms and tick boxes - they have more time with us! I you look on aftercancers.com/category/n...

there are some hints and tips that might help you - particularly about avoiding processed food (this has helped me lose pounds). Good luck

I'm sure you should be reviewed by lymphedema specialist every 6 months. Have you asked yr GP to write/email the clinic explaining the problem? A doctor is more qualified than a nurse practitioner or physio etc who has been on a specific course!

Hello rcs8256 - I have lived with LE in my left leg since my teens and I am now 72. Acheiving adequate compression was an issue for me for many years as it is expensive and was not available on the NHS or any health insurance as it was an existing condition. I was fortunate to have excellent manual lymphatic drainage in 2015 (leg reduced bt 5 1/2 litres) and very heavy compressison garments since then have kept it under excellent control. Now that I have proper compression and follow a Low Carb Healthy/high fat, real food, lifestyle my weight remains stable.

As you have a diabetes diagnosis (T2D), you need to change what you are eating. dietdoctor.com is an amazing web site with lots of brilliant assistance on how to reverse your diabetes diagnosis and gain control of your weight. We always talk about putting T2D into remission because it is a metabolic condition caused by eating the wrong foods. If your LE was caused by cancer, cancer is a metabolic condition and driven by too much sugar in our body - generally caused by insulin resistance. My LE was caused by poor bandaging after an accident.

As for a diabetic clinic - that will depend on whether your diabetes nurse/healthcare assistant has adopted the Low Carb approach (and there are an increasing number today) or if they are still following the Low Fat nonsense (driven by the industry driven DiabetesUK vs diabetes.co.uk, which now has their low carb program approved by the NHS. DiabetesUK still promotes the PHE Eatwell Guide that no longer meets the NICE Diabetic Dietary guidelines. phcuk.org/nice has the information on the Sugar Equvalance Infographics developed by the amazing GP Dr David Unwin. He has created them to illustrate how the different foods impact our blood sugar. This article discusses them - dietdoctor.com/how-differen...

I hope that helps and gives you a fresh way to look at the issues that drive weight control and T2D.

Hi RCS8256 - sounds like things are getting hard to manage. From life experience, if the public health care system is not meeting your needs (and let's face it - often it doesn't) then maybe look for private health care providers. Of course that approach is expensive. My husband's diabetes was not being managed well (in Australia) - mainly because he was not overly interested. So I found a private endocrinologist, exercise physiologist and diabetes educator - and me - and we gave him the workover he needed to get on top of his diabetes. It was not easy feat. And then there is your lymphoedema - self management takes dedication to self care every day - skin care, exercises, compression (often 24 hours a day - except when showering) - new garments every 6 months, night garments if you swell overnight, using a pump or getting regular MLD sessions, or doing your own MLD ...... And then there is diet - low carb seems to be the way to go for most people. I've recently done Weightwatchers and found it great (now called WW) - but ideally you would have an excellent endocrinologist and dietitian to give you the advice you need. All of this costs money. Without funding, yes, get the LSN on your side - demand for a better review, and 6 monthly checks. You need support and a plan of care that will get you on track and heading in the best direction possible. If you have family around you that love you and care, pull them in for support too. It's not easy achieving so much on your own. Wishing you luck and support! Keep us up to date with your journey, struggles and most importantly, triumphs!

Like you I have struggled with my weight for over 40yrs now at my heaviest I am told it is due to Lymphoedema as I have tried all diets without success now trying a liquid diet and more exercise hope it works as so fed up as my legs and stomach are so heavy.

Told visit dietdoctor.com for guidance and a new way of eating. No fat, carbs, sugar salt, potatoes, biscuits, cakes or bread.

I found having cornflakes for breakfast I gained more weight and not that filling.

Now breakfast is chopped onion, small piece of chopped cheese in frying pan with a little olive oil then add straight away 2 eggs, stir straight away until you get scrambled egg.

This feels me up til lunch time or sometimes 4pm then fish or meat with veg for tea.