Leg pain: Ok so I have lymphoedema in both legs and... - LSN

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Leg pain

Erika_N profile image
9 Replies

Ok so I have lymphoedema in both legs and pelvis and lower abdomen ive managed really well past 4 years few ups and downs but in the whole the legs look good. The past 2 days I've had pain in the legs like a constant ache no matter what I do I wont go. To look at the leg only mild pitting but no major swelling that's visible. Has anyone else experienced this ?

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Erika_N profile image
Erika_N
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9 Replies
Lynora profile image
Lynora

If you have a recent change in symptoms - such as pain - you must seek medical advice. It could be anything, but you must see a doctor.

shrinjoymukerji profile image
shrinjoymukerji

Is the pain your going through now did you face similar issues initially when you were diagnosed or only now ???

Erika_N profile image
Erika_N in reply to shrinjoymukerji

No they always ache 3ven when I've managed to get swellings down. But this was pain for a week and as I said no major swelling but had no injury or damage to the legs was really odd

Jclinton profile image
Jclinton

Both my legs and feet are affected. I'm type 2 diabetic . Have osteoarthritis & osteoporosis. I can't jump,can barely walk .I keep legs elevated as much as possible. The steroid shots would give me months with less swelling even though they were for my knees . I had to discontinue them because they were raising my A13 sky high. After I stopped getting shots blood sugar is way down. And legs back to swelling excessively. My mother & grandma & now my granddaughter is dealing with lymphodema. I am pretty sure it was inherited. It's a shame no one can seem to help.

Erika_N profile image
Erika_N in reply to Jclinton

It truly is the strangest of strange conditions x

catlover408 profile image
catlover408

yes yes I have it in both my legs. my feet,my pelvic, I am type 2 diabetic, I have osteoarithtis in both knees and back, I need to lose weight , I am stiff in both legs, can barely walk, I am in pain 24/7. What is the end game with lymphoedma? I don"t know and neither does my doctor. I feel as if I am very alone and need to find my own way

Erika_N profile image
Erika_N in reply to catlover408

Well its a life long condition so I guess theres no end game it's more a maintained and managed game. I've literally changed everything i do and est and ivr got swelling down to a minimum . Infact legs look normal at the moment but the min I get vicky and thinking maybe it's gone and dont stay strict with my routines you see the swelling coming back .

Jclinton profile image
Jclinton

In the US we're basically ignored . Told to massage ourselves . Even though we can barely move . And that's it !

Erika_N profile image
Erika_N in reply to Jclinton

That's terrible, have to say my nurse is great im very lucky even if I don't need to go in I can drop her a call or text

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