LSN
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LVA

I a fortunate enough to live in Mumbles near Swansea and have just benefited from LVA surgery on my left arm.

I had mild to moderate lymphodema for 14 years post breast cancer and was delighted to be offered surgery as one of 46 per year.

Five sites were chosen one turned out to be a no show “vein” but the other four all had at least three anastomoses.

Post surgery day 5 now wearing a full compression garment that’s ok not comfy but not hurting!

9 days to stitches out no driving until then

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Please keep us updated. I’m sure it will be a great success - and life changing.

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Hi davina ! Wonderful ! How did you find the operation ? How long did it take and did you do it at Oxford?

I’m saving to have it done

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I live in an area where this operation is carried out on The NHS.

It took 3.5 hours under a local anaesthetic.

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Sorry I should have added that staying still lying on my back nearly completely covered by a sterile tent was a challenge !

It was not painful felt sensations of pulling and pushing only.I was able to talk to both surgeons throughout the operation and was discharged shortly after the operation ended,

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Wow great !!

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HI, I live in the US and just wanted you to know, because I would have liked to have known when I had my LVA in 2017, the results are gradual. At 3 months there was noticible improvement and I slowly reduced the amount of time I wore compression and there was no swelling return. There was very gradual reduction again at 9 months and then at 1 year the skin was thinner still more. My arm now is essentially normal. I am beyond happy. I did have the surgeyr within less than 1 year post LE diagnosis.

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Thanks,I was advised that the improvement if any can take up to 3 years,I felt it was worth a shot would love to not have a “fat arm” anymore!

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Hi there my 14-year old son has primary Lymphedema here in the states. We are in Virginia. Which doctor did you use and do you recommend? Did insurance cover your LVA? Thank you!

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I was fortunate, my insurance covered it without a problem. LVA can only be done if there are still lymph vessels remaining that are still functioning. The surgery uses those vessels to connect to tiny blood vessels to allow them to pause the lymph out without using the normal pathway of vessels that have stoped working.

Primary LE is difficult because the lymph system is not as properly developed as it should be so there is a greater liklyhood that no healthy vessels are available to be used for the anastomoses. Some people with primary have been helped by surgery though.

In traumatic LE it is better to try the surgery sooner because the damage to the vessels is progressive so over time there are less and less vessels to be found. The rate of progression is unpredictable though so it is always worth being tested to find out where you stand.

I had my surgery in chicago with Dr.Chang. There are several surgeons on the east coast as well. I would talk to the staff at more than one and see what each says about your son because they might have differing opinions. There is a good one to check out in Los Angeles at USC, Dr Patel and also one that has a really good nurse who gives great information at the University of Iowa, Dr. Chen.

I hope your son turns out to be a candidate.

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Thank you I will look into those doctors. I’ve heard of most of them. He does have functioning veins. I love to learn that this worked for you!

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Fantastic result honey xx

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Hi Davina I too live in Swansea. Who was the surgeon and which hospital was used. I have bilateral lymphedema which is attributed to a fall when I was young. It would be interesting to give details to lymphodema clinic next time I visit. Thanks

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Tom Bragg a plastic surgeon operated with another whose name I didn’t get she was Irish another plastic surgeon.

I was referred by Singleton lymphodema clinic operated at Neath Port Talbot hospital.

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Thanks for info Davina shall speak to Singleton lymphodema clinic at my next appointment

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Thank you for Sharing your experience 🙏🤞

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Hi Davina - so pleased you’ve accessed this on NHS! I am sure you will find the benefits enormous- I am sure it will be life changing! I am less lucky and live in an area that has struggled to find any support for Lymphodoema. However, I am lucky in that I found out about Oxford Lymphoedema Clinic and was able to self fund LVA for my affected left leg (post cancer treatment). I have been thrilled with the results - four years on and the swelling in my left leg is under control, where it wasn’t pre-op. I do still have to manage my leg - stockings, compression, exercises - but on the whole the difference between my legs isn’t noticeable and I can wear most clothes and shoes. I do occasionally go without compression too - which would have been unthinkable before my surgery! I do hope your results are as pleasing!

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A great result for you fingers crossed for me!!

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Congratulations. Im happy for you. I live in North Wales, I have Lymohoedema 15+ years ago. They wont do me a surgery. This upset me a lot.

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There must be a reason not just where you live as they told me at clinic yesterday that a patient from Anglesey was operated on yesterday?

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