I’m wondering if anyone has had any experience of lymphovascular lesions and how it presented and was diagnosed.
My young daughter (11 years) has primary lymphoedmea of her lower body including her pubic mound. Last year she was also diagnosed with lymphorrea. A great MCT diet has controlled the lymphorrea to the point where it is nonexistent unless she eats too much normal dietary fat. Once this was controlled it became obvious that she was also passing blood which has no pattern or regularity. This has continued for about 3 years now. After multiple referrals and diagnostic tests it was decided that it was premature menarche.
I was very doubtful of this diagnosis and so was her endocrinologist due to the lack of patterning, the amount of blood and her current stage of development. After seeing a new urology doctor she suggested that this actually could be lymphovascular lesion of the uterine or vaginal track. She has an MRI scan booked for August but I am a little concerned because the last few days the volume of blood had massively increased. I will obviously call the urologist tomorrow for advice but I was wondering if anyone on here had been through anything similar?
Best wishes x