Hey guys and gals,
I'm new to this and have only been diagnosed over a year ago. I have lipo-lymphedema and it's been a massive struggle.
I'm 30 and all my life I've been told I'm fat, I'm over weight, I'm lazy. And all my life I believed it. At school, I was bullied because of my weight, I was the biggest girl there and my whole life I've felt massive.
It wasn't until one day I went to the doctors (with my mum) because my legs had swollen so much and I was in pain, (she was always there to support me) the doctors wouldn't listen to me. They just kept saying you need to lose weight, stop eating and work out.
I'd been on steroids and antibiotics due to another chest infection, I'd had chest infections since I could remember (since I was very little) I was never really over weight as a small child but until puberty and then everything expanded.
I was mortified when my mum spoke up, demanding that I got someone else to see me as they weren't taking it serious enough. So he referred me to someone else and bang... there we go we have an explanation - lipo-lymphedema.
I was told I'd be like this for the rest of my life. I was heart broken.
I went for scans and tests to make sure that's all the problem was and it was, even though I have asthma and a heart murmur but that's just a few of the things I have due to having sucky health. After I got my scans, I spoke to another doctor. (The 4th or 5th Doctor I'd seen) and he just told me without even looking at my scans I was fat. I needed to stop eating all sugar and fatty foods. I was to have nothing but salad and water.
He sat there looking up and down at me whilst I was in tears because hearing it from another person just completely shattered me. The poor nurse sitting there was just looking into space as my mum ripped this doctor a new one. As we stormed out, I could hardly walk due to being exhausted and drained from everything. I was completely numb.
I was then referred to a nurse at a hospital to get compression tights, and to see if there was anything else they could do for me. Unfortunately, there isn't.
The doctors from before, have black listed from being his patient because I had to bring my mum in to back me up when I said there was more too it. I now go and see this fantastic nurse at the hospital who has helped me with compression tights and bandaging to help me when I badly need it.
Now I just need to get on with my life with wearing compression tights my whole life. I try to go day by day and try to keep smiling. Even though I get so many looks and still get called fat all the time. I am doing my best to work out when I can and do my exercises to build up the strength in my legs even though it kills me, it hurts all the time.
If anyone has any advice or wants to talk please feel free to come and chat. I'm always free to chat.