Elsasmum in reply to Lynora5 years ago

Hi Lynora, no i haven't had cardiothoracic assessment . My toes aren't affected. My legs and ankles first thing before i get up are back to normal and the skin pale, as soon as I stand up and start walking to bathroom the tightness starts in right ankle and legs start redenning. My leg stings having a shower ,and rash appears.

I forgot to mention prior to all this my flat feet were giving me gyp & been diagnosed with two Morton's nuromas in right foot. Some toes in left foot misaligned. Oddly enough feet aren't as troublesome since swelling.

I also forgot to mention a had a course of water tablets same time as antibiotics, which helped but GP won't prescribe again due to causing kidneys to dehydrate.

Thank you .☺

Lynora in reply to Elsasmum5 years ago

What have they suggested for the dehydration? Are you having to drink lots? If the diuretics relieved the swelling, it could be a kidney problem. Hopefully the cystoscope will give more information. Let us know how it goes.

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Elsasmum in reply to Gladwin19075 years ago

Thank you and Good Luck yourself.

My appt was with consultant who arranged scan of bladder & kidneys for next day. He’s going ahead with cystoscope. Haven’t had any results at all. The leg isn’t swollen so much now, still rash paler,stings on & off all day, ankles improved too. Still a bit breathless. Am feeling better in myself which I’m thankful for. Just have to wait & see.

Elsasmum in reply to Little-me81-54744 years ago

Thanks for your post, I hope you're getting the correct treatment now. That must have been quite a shock. Are you taking diuretics ?

As for myself my left leg swelled up too but I'd lost confidence in the GP & didn't go back. I have reflux and the most gripping pains round my waist if i strain , I think it may be a hiatus hernia but no-one believes me.

Results from blood test showed low white cells and thyroxine increased for 2 months. Different GP found missed heartbeat I was very breathless, I've had 2 ECGs and Echocardiogram and seen specialist, having 7 day monitor fitted Tuesday. Told to raise feet above heart and rest by GP. Specialist encouraged walking more and thinks breathlessness due to varicose veins. I am quite active again, edema much less but ankles start swelling when I get up in morning. Unfortunately I can't rest as much as if like to, and the advice I've been given seems contradictory. Ah well I'll know more after monitoring. Best of luck to you.

Elsasmum in reply to Lynne-byn4 years ago

Hi there, sorry to hear how rough you’re feeling. Have your kidneys been ruled out for the oedema ?

Have you had an ECG etc ?

I hope you’re appointment is soon & maybe some explanation of your condition.

It’s hard to know the right questions to ask at the time, I usually think of something when it’s too late. 🙄

Is there anyone to support you ? That can be a great comfort 😊 There are some great people on this group , so knowledgeable and kind .

Elsasmum in reply to Elsasmum4 years ago

Just an update, the 2nd GP who noticed missed heartbeat seemed dismissive of my stomach pain declaring it was muscle pain in ribs & pressed so hard on the left side I was aching the rest of the day! Yet another chest X-ray was declared normal. Due to my requesting Omeprazole every month and their refusal to put it on repeat prescription, a 3rd GP finally listened to me & agreed a hernia is possible. I went for a endoscopy but because I’d not had the 7 day heart monitor fitted - there were actually no working monitors available when I attended my appointment in November- the endoscopy was postponed awaiting the heart monitor results. I’m now fitted with said monitor but was given a 24 hour leaflet instead of 7 day one. The cardiac consultant said In November I shouldn’t still be taking Quinine , which I’ve been taking for years for leg cramps. I’ve stopped taking it after reading the US stopped prescribing it years ago! And the NHS also agree. Anyway I have a question; All the info I’ve read re monitors states its holster ones that either clip on to a belt or hang round the neck in a bag. Mine is stuck on to a sticker 😳 on my skin. Which bit do I press if I hear a bleep, is it the large centre one? Thanks in advance.

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Elsasmum in reply to Lynne-byn4 years ago

Hi , thank you for responding I hope you’ve had your appointment now and some way to a diagnosis and treatment. I’ve only just seen your reply so I must apologise for not replying sooner. When I first posted I had no idea what was wrong and probably am on the wrong forum, I still have no idea either. I hope you’re feeling better X

Elsasmum in reply to CEJF4 years ago

Hi there , yes we do sound pretty similar, good on you for trying WW 👍🏻any luck so far? I’ve also put on a few stones, I thought last year was bad enough buying a size bigger 🙄 I’ve taken over dog walking, I still work part time even though I’m retired, I’m always on the go & even started back looking after our horse, but the weight hasn’t gone. I walk a lot & do about 11.000 steps on a busy day. Sometimes more. The cardiologist recommended being more active. I’m still waiting for the event monitor report 4 months later. I have a Fitbit watch which always tells me to breathe. I have a sleep app which often shows my heart rate drops for 10 minutes at a time below 50. GP (4th one) doesn’t seem concerned.

Regarding the waistline- mine feels like a solid shelf , don’t know how else to describe it. Not just a roll of fat, it is there for keeps, well I hope not really! Is that similar to you ? Do you have arthritis in your fingers too ? Mine are swollen especially round the knuckles.

I got conflicting advice - to raise ankles legs higher than heart , but most nights it’s the reflex that’s a pain so I sleep propped up . It was nice to hear from you , I look forward to good news from you or just another chat 😊