After being diagnosed with lymphoedema last August and wearing surgical stocking which didn't seem to do much I have just been told the consultant got it wrong and I actually have lipodema. Anyone any suggestions and results on dealing with this please ?
Mis-diagnosis: After being diagnosed with lymphoedema... - LSN
Mis-diagnosis
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jacqs1967
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The Lymphoedema Support Network (LSN) lymphoedema.org have information on lipodema and there are now support groups specifically for liopodema. The LSN will have details.
You may find lipoedema.co.uk a useful site.
On Facebook, there is a patient group called Talk Lipoedema
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