I have been reading all of the post here and can hear the hopeless and frustration. I too have Lymphedema. I started swelling in 2004. I've saw thirteen different doctors before I got a definite diagnoses. I had already started doing the massages and leg bandage ect... However, in past two years the swelling has gotten worse as well as pain in feet, legs and knees. Clothes and shoes are a very frustrating subject and I am no longer the out going person I used to be. I felt hopeless. But...... Good news is this past September I went to a seminar in San Franciso Ca. I had already been told I should see this Specialist in Stanford but it would take six months to get an appointment as there aren't many doctors that know anything about this disease. While at the seminar, met another specialist from down south and two of his patients. There is a procedure (SAPL) that is being done and is very successful. It is not a cure and you must follow aftercare advise but, it will give you normal limbs again. It also reduces the bouts with cellulitis and help with the pain in the feet and legs. I am planning to have this procedure before the end of the year. As I said, I met and spoke with two of the patients who are thrilled with the outcome. The downside is that insurance here in the US doesn't pay a dime. Some people have done a go fund me page to raise funds. I don't know why this information isn't more readily available but there is a lager push for awareness than ever before. This surgery is not new and has been around and successful for years. Anyways, I hope this information helps. I know I was thrilled to find out about the seminar and I was amazed at the information all of the doctors and patients and suppliers shared. It has given me hope again .
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